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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: Jun 24 9:40pm | Replies (615)

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@jbri

Beware of doctors who insist that this is all in your head and prescribe antidepressants. I had a similar situation here when I had a severe recurrence of CAEBV (Chronic Active Epstein Barr Syndrome) a few months ago. Fortunately when I lived back east my doctor who diagnosed me had other patients with CAEBV. He knew better than to say it was all in my head.. He also told me that I'd have to find what worked for me in handling the symptoms. Afte3r 20 years that still seems to be true. I have used acupuncture in the past; it helped. I just found a reputable acupuncturist here in Tucson, AZ. While not as fast as I'd like, it is helping. I also am taking Vit D3, Ubiquinol and Vit C. Today I started Monolaurin, suggested by Jeff's doctor ( jeff49 @jeff49 above). Don't give up on yourself. And don't let anyone tell you that the pain and fatigue and lack of energy you are experiencing is all in your head. It's not.

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@jbri thank you for your kind words. It saddens me that doctors are unwilling to consider EBV as the cause of chronic illness, especially since it appears to have such a debilitating effect on individual lives. Personally, my life has been affected significantly. I can no longer walk my dog without pushing myself, even getting clothed most days I am ashamed to say takes me great time and maximum effort. I too miss out on a great deal of social events @mrmie due to the constant fatigue. I have medical insurance and intend to go private if my GP is not compassionate upon my next consultation.