Lymphedema of the neck: What did you do?

Posted by lilypilly @lilypilly, Jan 2 9:16am

Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?
I get regular massage on it but I need more.
Also a very dry mouth and phlemn in the throat. Help?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

lollie | @lollie | May 22 1:36pm

In reply to @lilypilly "Wow. I am in Canada do you know if that would make a difference?" + (show)

No- I do not...definitely worth an inquiry though! They're located in MN so a close neighbor 🙂 Good luck to you!

lilypilly | @lilypilly | May 22 5:54pm

In reply to @lollie "No- I do not...definitely worth an inquiry though! They're located in MN so a close neighbor..." + (show)

Thank you but only in the US. I will need a script from a US Dr.
Guess I am out of Luck.
Thanks again

niml | @niml | Jul 18 5:22pm

In reply to @lilypilly "Wow thank you so much for the info!" + (show)

Yes. I'm certainly going to check this out. Thank you so much. My neck is so bad and feels like a tree trunk. It is keeping me from being able to swallow properly.

mattbrolly | @mattbrolly | Jul 19 7:31am

I am sorry to hear what you are going through. I have the same symptoms. Ask your radiologist or oncologist for a script for physical therapy. The therapist will massage you and provide self MLD exercises for you to do on your own. It isn’t perfect but it sure helps. Best of luck to you!