Hi,
I'm new to this group. I was dx with fibro right after having mono. I was told in Sept '06 I had mono, which as far as I knew, was my first time. I'm 61 now. I started getting over it in Dec, but had a relapse. Late Jan, was still feeling awful so was sent to a rheumatologist who dx me with fibro. It took several months to feel better, but I got back on track. In about 2011 my fatigue and pain got worse and has been that way since. I had type A flu early 2017 and missed 10 wks of work due to terrible fatigue. Got back to work but then noticed more brain fog and making mistakes. More fatigue. No FMLA from May '17 to May '18 due to missing that 10 wks plus time off for vac and people working trades for me. Got FMLA back end of May this year. Got sick with a virus early Oct and am still out from work. I'm thinking my EBV gets going every time I'm ill/stressed. I'm supposed to return to work Sat. My Dr said "you just have to get back on the horse if you get bucked off". My reg bloodwork was all ok. I'm hoping if I ask for the EBV test, he'll do it. All my rheumatologist does is to keep trying to keep shoving higher dosages of Lyrica and Cymbalta at me. I actually don't take the amounts he prescribes, but take as little as possible. Am worried about having to quit my job and trying to afford ins. And disability takes a long time to win. So I'm trying to see what's working for others on here to try a new approach after 12 yrs of fighting for my Dr to hear what I'm saying. I'm going to try an ND. I had one for 15 yrs and she retired, so on to a new one. My daughter and her 18 yr old son seem to have alot of the same issues with her having swollen lymph nodes and terrible pain and him having one virus after another and fatigue and missing 2/3 of high school as straight A student. So we all will have to have our EBV checked.
I'm so happy to have read all of this thread way back for a few yrs! Lots of insight and gives me hope for the future! So tire of being sooooo tired!