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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 4 days ago | Replies (634)

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@mrmie

Hi @kimberly1973 So sorry you are dealing with recurrent mono. Yes, I can relate just like many others. I have been on a roller coaster ride the past 2 1/2 years. I know what it feels like to think you are getting better then BOOM! My initial EBV infection was most likely when I had a bad case of mono at age 21. The debilitating fatigue lasted 6 years. Then had a 1 year relapse in my late thirties and then at 43 began dealing with this current relapse. I have been seen by infectious disease, integrated medicine, GI, endocrinology, and of course my primary doc (who told me to exercise!). She's not my doc anymore. Anyway, last summer I realized I had to be my own advocate. I began doing research and reading all I could about EBV. I became a part of some facebook EBV support groups to find out what was working/not working for others. Some things people have found helpful are monolaurin (lauricidin.com), L-lysine, high dose vitamin C, anti-viral medication, dietary changes (avoiding gluten, eggs, dairy, sugar), limiting stress as much as possible. Low vitamin D, low iron, and low zinc levels tend to be an issue with those with EBV. Most people recommend seeing a functional medicine doctor or a naturopathic doctor. I don't have any of those around me, but I've done a lot of reading from doctors who have treated EBV and related illnesses like chronic fatigue syndrome and fibromyalgia. You may want to check out their websites. Rodger Murphree, DC (yourfibrodoctor.com), Kasia Kines, PhD (ebvhelp.com), the Mono Project (University of Minnesota), Jacob Teitelbaum, MD (vitality101.com). . I am also dealing with adrenal fatigue, which can be related to the EBV, so I just started taking a few supplements for that. Actually EBV is linked to so many things. It affects everyone differently too which makes it hard for conventional medicine to treat. There is not going to be one medication that cures it! But first conventional medicine has to believe that you are sick and most don't. Frustrating! However, I have learned not to give up hope. Recovery will not be a straight line upwards. It will be full of twists and turns and ups and downs, but eventually I will get there - especially since I know so much more now. I just have to find what is going to work for me. When this past round hit in 2016, I remember getting ready for work on the floor for several months. My husband had to do all the house chores. Then, I had to quit a job I loved a year later due to a relapse on a relapse. I literally could not even work from home on the couch with my laptop. Then, when I thought I was well enough to work part-time, I found a job I loved only to relapse 4 weeks into it. That was the straw! That's when I knew I had to do some research and be my own advocate! Please hang in there, see what's helping others, do the research, and get well!

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