What are your 3 worst symptoms?

Posted by gregorb @gregorb, May 14 7:23pm

Trying to determine the 3 worst symptoms we are dealing with as a group.

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@akabarracuda

Chronic Fatigue and POTS were the worst - but Mestion has been a game changer! The last remnants of LC are now legs that get tired and extremely stiff after sitting, walking, standing, etc. I used to commute to NYC via walking 5 miles a day and after a mile now, my legs stiffen up and I'm in pain.

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I never heard of Mestinon, so I researched it. Sounds promising. I plan to discuss a prescription with my medical provider.

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The generic drug is Pyridostigmine. I started taking 1/4 of a 60 mg tablet morning and night for a week, then 1/2 a tablet morning and night for a week and now i'm on a whole tablet. I am being treated by the Columbia Presbyterian long covid clinic in NYC. The effects were almost instant on the full dose. I was in great shape before covid 5' 4" weighing 125 lbs, then migraines, dizziness, sensitivity to light and sound, etc. My cardiologist sent me for a sleep study, (< less than 5 apneas) and i gave the machine a 6 month trial before boxed it up and hid it in my closet. Being of a certain age 55 yo, i also started Hormone Replacement Therapy (through midi.com) and the estrogen patches and progesterone (100mg) at night helps with sleep and anxiety.

I hope you find relief!

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@akabarracuda

The generic drug is Pyridostigmine. I started taking 1/4 of a 60 mg tablet morning and night for a week, then 1/2 a tablet morning and night for a week and now i'm on a whole tablet. I am being treated by the Columbia Presbyterian long covid clinic in NYC. The effects were almost instant on the full dose. I was in great shape before covid 5' 4" weighing 125 lbs, then migraines, dizziness, sensitivity to light and sound, etc. My cardiologist sent me for a sleep study, (< less than 5 apneas) and i gave the machine a 6 month trial before boxed it up and hid it in my closet. Being of a certain age 55 yo, i also started Hormone Replacement Therapy (through midi.com) and the estrogen patches and progesterone (100mg) at night helps with sleep and anxiety.

I hope you find relief!

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Thanks for thr reply and valuable info. Good luck going forward.

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So sorry for your struggles. Best of luck.

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