Fibromyalgia is a group of symptoms. And instead of the doctors trying to get down to the root cause, they blame all of your symptoms on fibromyalgia which is just more symptoms. There can be multiple causes to these mystery illnesses such as fibro and chronic fatigue syndrome. Reactivated EBV is what I am dealing with. I recommend learning all you can on your own and follow up with your doctors as instructed. I recently watched in online summit hosted by Dr Rodger Murphree. He treats fibro patients around the world and has a lot of info on his website http://www.yourfibrodoctor.com. William Rawls,MD is another good one. I started his protocol 2 months ago and am excited to have experienced improvements. http://www.rawlsmd.com. It is completely normal to feel scared. Know that there are others struggling with this too and we care. I wish you wellness soon and peace and comfort to your granddaughter and family. Keep us posted on how you are doing, if you have questions, or simply need to vent.