Connect
← Return to Treatment for chronic Epstein-Barr virus (EBV)
Discussion
Treatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: Apr 24 10:52pm | Replies (608)Comment receiving replies
I was just told today I have chronic EB. My last labs showed a had a recent flare and according to the doctor it was acute. I am now having another flare just weeks after this last one. I was referred to an Infectious Disease Doctor to try to determine why it keeps reactivating. I have a terminally ill 2 year old granddaughter who lives out of state. I am terrified i will never get to see her again since she is so fragile. I have no idea what the warning signs are that I am reactivating. I was told many years ago that I have Fibro so I stay fatigued. I am 65 and have no idea what to do. My insurance only covers the county I live in. Frankly, I am scared.
Replies to "I was just told today I have chronic EB. My last labs showed a had a..."
Fibromyalgia is a group of symptoms. And instead of the doctors trying to get down to the root cause, they blame all of your symptoms on fibromyalgia which is just more symptoms. There can be multiple causes to these mystery illnesses such as fibro and chronic fatigue syndrome. Reactivated EBV is what I am dealing with. I recommend learning all you can on your own and follow up with your doctors as instructed. I recently watched in online summit hosted by Dr Rodger Murphree. He treats fibro patients around the world and has a lot of info on his website http://www.yourfibrodoctor.com. William Rawls,MD is another good one. I started his protocol 2 months ago and am excited to have experienced improvements. http://www.rawlsmd.com. It is completely normal to feel scared. Know that there are others struggling with this too and we care. I wish you wellness soon and peace and comfort to your granddaughter and family. Keep us posted on how you are doing, if you have questions, or simply need to vent.
Connect
Hello @chickie001, I combined your EBV discussion with a discussion titled, "treatment for chronic epstein barr." I did this so all of the members currently discussing have EBV and how they are managing it would see your post and share their thoughts.
@chickie001, while we wait for others to share their thoughts with you, would you mind sharing what your provider told you about it being acute? It is good that you were referred to an infectious disease doctor and that your provider seems willing to help you find the answer.