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Have you had side affects from the Reclast infusions? I appreciate your information. It was one of the very few non-scary Reclast posts. My first infusion is at end of August and I can't stop reading posts about nightmarish side affects. While I understand that people who have good outcomes don't post about it very much it seems the bad outcomes are overwhelming. I saw endo in June and I wish the infusion was right away bcz waiting 2 months is pure agony. I am scared to death reading these posts and it was refreshing to hear someone's positive story so I thank you. Does anyone know if having mild TMJ is a concern when getting Reclast infusions or am I just making myself crazy because I feel crazy and confused and lost.

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Replies to "Have you had side affects from the Reclast infusions? I appreciate your information. It was one..."

@tummis05 @susanop Thank you for your excellent description of bone loss and of absorption.

I have an excellent endocrinologist I’ve been seeing for about 2 hours. My endocrinologist told me that I was already doing everything possible to maintain my current level and to prevent additional bone loss. However, I had a sacral fracture (likely due to pelvic radiation the year before) and that with this fracture he recommended medication. I did 12 months of monthly injections of Evenity to “build bone”. After that 12 months I had another bone density scan which showed significant gains in bone density in my hip and lower spine. I then had a Reclast infusion which is meant to preserve bone density and prevent more bone loss.

I have been weightlifting, hiking, x-country skiing and generally very active throughout my life. I am careful to get enough calcium through food sources and on the days I don’t get enough calcium I take one calcium tablet with food (about 350 mg).

I work with a trainer for weightlifting and balance and I do strength training on my own 2-3 times per week. I have done yoga off and on for years and will soon join a yoga class at my gym.

I did not have any side effects from Evenity or from Reclast. I certainly expected to have joint pain, exacerbation of TMJ which I already have (I wear a dental bite splint at night which greatly helps protect my teeth and jaw) and the flu-like symptoms from Reclast. Perhaps I’m one of the lucky ones but perhaps it’s mostly the people who do experience side effects from these medications that we hear from.

In my view, working closely with my endocrinologist and following his recommendations is reassuring for me. I’m 73-years-old and while I do have a few joint pains here and there from osteoarthritis my doctors and my trainer tell me I’m doing far better than many people in my age group.

@tummis05 Here is another way to look at Reclast. What if you have no side effects? Isn’t that a possibility?

Let me add another non scary Reclast post. In December '23 I had a reclast infusion and because I had a friend in Ohio who had one the week before me, I was aware of the importance of being hydrated, taking 1000mg of acetemiocine and even a Claritin before hand. Neither my endocrinologist at the time or the infusion center mentioned this.
So well prepared I had the infusion, continued to drink water and and rest for the rest of the day. I experienced zero side effects. Then in December '24 I had another scan and saw great improvement in my spine; not so much at hip level. That said, the hospital where my previous 5 scans were taken, upgraded and the new system which included TBS might not be correlate well to the previous scans. Hope to have something to compare with at this year's scan.

Most people have no problem…hydrate and make them put it in slowly.