Treatment for chronic Epstein-Barr virus (EBV)

Posted by cummings3 @cummings3, Jan 23, 2017

My son has been suffering with Epstein-Barr virus (EBV) for over a year. I have taken him to an immunologist and infectious disease doctor with no answers. He is always tired and never feels well. He has relapsed with Mono twice in the last 10 months.

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Hi everyone - I was diagnosed at Mayo with Chronic Fatigue Syndrome as a 16 year old and spent 5 years recovering. I'm now 52, and the symptoms have returned with a vengeance. I recently had lab work done with the following results. My physician offered no interpretation of the results, but I'm pretty sure from what I've read online that these numbers indicate EBV is fully reactivated. Thoughts?

EBV VIRAL CAPSIDE AG (VCA) AB (IGG) = 347.00 U/mL
EBV NUCLEAR AG (EBNA) AB (IGG) = 151.00 U/mL
EBV EARLY ANTIGEN D AB (IGG) > 150.00 U/mL
IMMUNOGLOBULIN M = 394 mg/dl

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@mmckee

Hi everyone - I was diagnosed at Mayo with Chronic Fatigue Syndrome as a 16 year old and spent 5 years recovering. I'm now 52, and the symptoms have returned with a vengeance. I recently had lab work done with the following results. My physician offered no interpretation of the results, but I'm pretty sure from what I've read online that these numbers indicate EBV is fully reactivated. Thoughts?

EBV VIRAL CAPSIDE AG (VCA) AB (IGG) = 347.00 U/mL
EBV NUCLEAR AG (EBNA) AB (IGG) = 151.00 U/mL
EBV EARLY ANTIGEN D AB (IGG) > 150.00 U/mL
IMMUNOGLOBULIN M = 394 mg/dl

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@mmckee How horrible to have it back. I will tell you what was helpful to me. You can roll your eyes for a while, but if you're interested, check it out.
I started following the basic diet. The whole thing described my path. I was forced to listen when I came across a video by this guy. Yes, it may sound a bit bizarre... but it works so I don't care how bizarre it is.
https://goop.com/wellness/health/the-medical-medium-and-whats-potentially-at-the-root-of-medical-mysteries/
That will explain it. You can just search more.

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@mmckee

Hi everyone - I was diagnosed at Mayo with Chronic Fatigue Syndrome as a 16 year old and spent 5 years recovering. I'm now 52, and the symptoms have returned with a vengeance. I recently had lab work done with the following results. My physician offered no interpretation of the results, but I'm pretty sure from what I've read online that these numbers indicate EBV is fully reactivated. Thoughts?

EBV VIRAL CAPSIDE AG (VCA) AB (IGG) = 347.00 U/mL
EBV NUCLEAR AG (EBNA) AB (IGG) = 151.00 U/mL
EBV EARLY ANTIGEN D AB (IGG) > 150.00 U/mL
IMMUNOGLOBULIN M = 394 mg/dl

Jump to this post

Hi @mmckee. I'm sorry that this has come back. I've read that with the early antigen elevated, it is probably reactivated and I'd say definitely if the IgM is elevated. I wouldn't worry about trying to interpret the results and put your energy into getting well. Join some online support groups and do your own research. Right now I'm hitting it from all angles-- supplements, diet, and just started Valtrex. Know you are not alone. Many of us have been couch ridden at ine time or another. I wish you well. Let us know how it goes

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@mrmie

Hi @mmckee. I'm sorry that this has come back. I've read that with the early antigen elevated, it is probably reactivated and I'd say definitely if the IgM is elevated. I wouldn't worry about trying to interpret the results and put your energy into getting well. Join some online support groups and do your own research. Right now I'm hitting it from all angles-- supplements, diet, and just started Valtrex. Know you are not alone. Many of us have been couch ridden at ine time or another. I wish you well. Let us know how it goes

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Thank you, Valtrex worked for me in 2016. Was done as a trial would not give me more when I ran out. Found energy healer whom got me back to work. EBV was ready quiet past Friday, new mystery at hand now.

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Hello. Has anyone here tried Biofeedback and a Hyperbaric oxygen chamber? I am currently being treated for EBV and dermatomyositis with these two treatments. I have also read that eating a whole food diet, juicing then drinking lemon balm tea will kill EBV. Good luck!

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@lrymer

@mmckee How horrible to have it back. I will tell you what was helpful to me. You can roll your eyes for a while, but if you're interested, check it out.
I started following the basic diet. The whole thing described my path. I was forced to listen when I came across a video by this guy. Yes, it may sound a bit bizarre... but it works so I don't care how bizarre it is.
https://goop.com/wellness/health/the-medical-medium-and-whats-potentially-at-the-root-of-medical-mysteries/
That will explain it. You can just search more.

Jump to this post

@lrymer This article is such a mirror of my experiences through the EBV journey that it's almost eerie. Particularly the infections and allergies that I experienced the first go-round as a teen. Also the 6-week life cycle of the virus that's mentioned later in the article almost perfectly aligns with my current bouts of severe "flu". I've already started on many of the Healing Herbs and Supplements based on other research, and I'm going to download the full book to my Kindle. Thank you, I'm very fortunate to have come across this community!

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@mmckee

@lrymer This article is such a mirror of my experiences through the EBV journey that it's almost eerie. Particularly the infections and allergies that I experienced the first go-round as a teen. Also the 6-week life cycle of the virus that's mentioned later in the article almost perfectly aligns with my current bouts of severe "flu". I've already started on many of the Healing Herbs and Supplements based on other research, and I'm going to download the full book to my Kindle. Thank you, I'm very fortunate to have come across this community!

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Yes! How weird.. i bought that book off Amazon this morning!

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Hi all -
I think my original post was edited out. Traditional medicine does not believe in cure. Not really cure, but extremely effective "containment" of EBV.
Astra Isatis (herbal combo) Lysine and Monolaurin. Give it 10 days.

I am 76 years old. I still ski, climb hills, work full time, and enjoy life. What a change from 10 years ago! I was virtually handicapped from decades of EBV reactivation. A wonderful teaching naturopathic doctor at Bastyr University took one
look at my old labs and said everyone had been misreading my ANA's ---- I didn't have lupus, I had an EBV reactivation. I was at 3,533 on one my tests,
where I should have tested around 30. Astra Isatis is available on line, so is monolaurin, and lysine is available almost everywhere. Sad thing is that
even after ten years, my GP and other docs (one of whom ran the test for me as directed by the naturopath so my insurance would pay for it) still don't
acknowledge the EBV in anyway. It's always the elephant in the room. They run their own tests, which always come back negative! I've taken this
protocol for 10 years and will take it the rest of my life. Do NOT take anything with arginine in it! While it's wonderful for temporary energy, my understanding
is that it dissolves the "capsule" that contains the virus and allows it to reactivate. Over simplification, I'm sure - but be careful.

The lysine is cheap. I take 1,000 mg a day. Astra Isatis in not cheap - about $50 for 270 tablets and I take 2 twice a day. Momolaurin around $40 and I take it twice a day. I can get by without the monolaurin once I get the virus in remission, but if I think it's acting up again, I have to take it faithfully. Insurance pays for none of it, but it's worth it's weight in gold to feel good. Good luck to all!

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@kschmoyer9

I would love to tell you more about them. I take their probiotic (ProBio 5-it has an anti fungal, enzymes, and 5 probiotic blend). A special multivitamin (XFactor-it has a special blend of Aloe in it to help with absorbing nutrients better). These two help strengthen my immune system.
Plexus Slim helps balance my blood sugar.
MegaX (Omegas 3,6,9, + 5&7) helps my insomnia.
BioCleanse (Magnesium) helps oxygenate my cells and gently cleans out my gut.

I know it sounds like a lot, but I can't believe the difference these products have made in my life.

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Hey kschmouer9,
I know this is an old post, but you seem like you might know a lot about dealing with this. I have ringing in my ears, GERD, digestive issues (even though I eat a pretty clean diet), constant urination, and insomnia. This all started last year, went away, but then came back with full force. EB was around 560 on one test. Are these typical symptoms of EB? Just wondering.

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Hi. My 15 year old daughter was diagnosed with EVP about 17 months ago. She seemsed to need a lot of sleep since but we figured it was just being a teenager. Recently she has been very tired and struggles in class. We took her to Doctor, who tested her EBV. It's came back high for EBV and referred us to an ID Doctor. My question is; can it take more than 17 months for the initial EBV to resolve or are we looking at a chronic condition? What should I be asking?

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