@nomadkazoo Hi Charlie. I totally get your frustration. I left a job I loved a year ago because I simply could not work. I basically had a relapse on a relapse. I have not gone to Mayo for the EBV. Maybe someone will chime in who has. I'd recommend becoming a part of a few EBV support groups. There are some on facebook. It's a great place to learn what has helped some people. Keep in mind EBV can affect different organs/systems so what works for one person may not work for you. You are your own best advocate. Unfortunately as you already know, conventional doctors either don't acknowledge it or don't know how to treat it. What antiviral med were you on? You may want to find a new doctor. I just told my nurse practitioner today that I have read that Valtrex can be helpful for some. She said she would look into it. Some have been helped by diet and supplements. it is a tough journey but hang in there!