Developed Rash on Hydroxyurea (HU)

Between Walgreens knowing me for 20 years and their use of GoodRx or SingleCare, they usually give me 50-80% off the retail price.

Regarding yogurt: Like many dairy products - milk, cheeses, cottage cheese, and yogurt- they can also be constipating in many people, even if they have probiotics. I eat yogurt, but not to speed up my motility, as it seems to have (like cheese and other dairy) the opposite effect on me. The pills are too expensive for me.

I have also experienced “motility” issues over the past few months and decided it might just not be aging. And, since I love prunes, a couple in the evening solves that. But, I’ve also found cabbage/sauerkraut (slaw, soup) is very helpful and I love it.
My grandmothers go to for just about anything that ailed ( I think she would have used it for a broken bone!) you was Milk of Magnesia! But, she didn’t dilute it! Ugh.
I found a tub of retinol cream that I use on my hands and arms every night and that has really helped my hands itching.
And, when I started on HU few years ago a 90 day supply was about $168.00. Now, it’s $46.00. And, that’s with Medicare and supp.
Get an adjustable back scratcher! Works wonders.
I was about 72 when I started on HU. 77 now. So, hold a good thought.

Has anyone developed a rash on their feet from Hydrea I’ve noticed some purpleish blotches in red spots, but only on one of my feet. Not sure if this is related to Hydrea.

I do not have this, but I think I have seen posts about rashes or discoloration of the skin of arms, legs and feet of ET patients. You might check out some of the Facebook pages for MPNs and ET. Quite a lot of info there.

79 years old ET JK2+, diagnosed summer 2024. Platelets under control with 500mg Hydrea M-W-F. Considering taking Longvida Optimized Curcumin as a supplement. Anyone else taking it in similar circumstances?

@mamsgirl1998, I moved your question about rash with hydroxyurea to this related discussion so you can read previous posts and connect with other members.

- Developed Rash on Hydroxyurea (HU) https://connect.mayoclinic.org/discussion/developed-rash-on-hu/

You can also go to the main group page https://connect.mayoclinic.org/group/blood-cancers-disorders/ and search for topics related to your questions.

Turmeric/curcumin may not be advisable for those taking aspirin because of bleeding risks. Check with yr doc first.

After being on HU for a couple months I too, developed a rash on my neck and chest. It was itchy and lasted about a week. Hydrocortisone cream helped soothe it and tea tree oil helped a lot. I reported it to my doctor and he said that this was common. I haven't had any rash since and am on 500 mg HU daily.

I had forgotten it, but your post reminded me, after being on HU for a while whenever I would sweat (summer in AZ!) the skin around my neck felt like it was on fire. It would redden and, if I rubbed it, it really got worse. Hydrocortisone cream didn’t help that much but, OK laugh, I tried diaper rash cream and it helped the most.
My hands would also develop tiny little scabs in the top of them, as if I had scratched and little blood blisters developed. But, I did not scratch. I used both hand cream and hydrocortisone cream and that would clear it up and I can’t recall last time that happened.
One other thing that I have not seen mentioned here is that I could smell a chemical odor on my skin. It wasn’t overwhelming and when I asked the PA at Mayo, she said she didn’t detect any odor on my skin. Ultimately, it just stopped.
Now, it’s just the fatigue and hair loss that I notice. Annoying but Small price, I think.

What is Medicare Advance program? I never heard of it.