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← Return to Treatment for chronic Epstein-Barr virus (EBV)
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Treatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: 2 days ago | Replies (615)Comment receiving replies
Hello my name is Charlie @nomadkazoo new to this form. I'm 57 2015-2016 lived through 10 mo mystery illness. My head spins every time I review this lost period of time. Numerous Doctors and testing no direction found, issues from heart racing out of control to black outs, numerous infections, fatigue,bulging disk back neck. roving pain to swelling of extremities, grinding lansing head pain. mental fog, pain full burping lasting hours.
Late 2015 my daughter read article on EBV. Asked to be tested,results were very high Doctor in charge didn't no what to make of numbers. Referral to communicable disease specialist was made. After review and appointment was put on trial medication for herpes patients.
Worked for 3 weeks till med ran out,asked if we could continue with med, no was answer it was a trial and sent me on my way lost.
By accident through my wife's business we were introduced to and energy healer. From first visit with remedy to back to work in three weeks. Was told could take up to two years for my system to heal. Past two years have been up and down with a variety of illness. Wrote it off to fact my entire system was weakened and I still healing.
My concerns is that we only put a band aid on the EBV, for I'm out of work again with no help from local Doctors, had to demand test for EBV when told was not necessary. Numbers mirror past results, condition and issues same with couple new twist. Have not been able to visit energy healer she unavailable till 09/06 for reading. I'm not sure at this point if she can fully contain this health problem.
Is their help for me at the Mayo Clinic I need to work I need to get off this human hamster wheel.
Replies to "Hello my name is Charlie @nomadkazoo new to this form. I'm 57 2015-2016 lived through 10..."
Hi Charlie and everyone - My name is Ann. Have had this since one of my students bit me in 2007. It comes and goes but this time it has been here 5 months with the symptoms you all are also having. My spleen is swollen up again - ow! This time I am going to go to an ENT to see if something additional is going wrong down my throat. But I doubt it. I think my doctors are just baffled and will go along with the ENT to make sure EBV hasn't mutated into something else. Am going to try the regimen I saw on a post from a couple years ago with Di-Hist and D-ribose etc. Will ask for Valtrex. I am so very sorry you aren't working and understand how that impacts your world. I am still working but don't think it will last much longer. I work four 10's so get 3 days in a row off. I just don't want to be home because I did that before and spiraled downwards - I know all of you are familiar with that unfortunate side effect. Will check back here to see if someone is having success with a treatment so I can try it, too. Thank you for being here.
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@nomadkazoo Hi Charlie. I totally get your frustration. I left a job I loved a year ago because I simply could not work. I basically had a relapse on a relapse. I have not gone to Mayo for the EBV. Maybe someone will chime in who has. I'd recommend becoming a part of a few EBV support groups. There are some on facebook. It's a great place to learn what has helped some people. Keep in mind EBV can affect different organs/systems so what works for one person may not work for you. You are your own best advocate. Unfortunately as you already know, conventional doctors either don't acknowledge it or don't know how to treat it. What antiviral med were you on? You may want to find a new doctor. I just told my nurse practitioner today that I have read that Valtrex can be helpful for some. She said she would look into it. Some have been helped by diet and supplements. it is a tough journey but hang in there!