1. < Cancer: Managing Symptoms

Chemotherapy-induced neuropathy: What helps get rid of it?

Posted by taxlady @taxlady, Jan 31, 2023

I finished chemo April of 2022
I have neuropathy in my fingers and feet. It doesn’t seem to be going away. What are treatments I can do to help get rid of it.

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deserthykr | @deserthykr | Jun 5 3:26pm
In reply to @cmdw2600 "Your Medicare plan MAY pay for a portion (or maybe all). In my case, I paid..." + (show)
@cmdw2600

Your Medicare plan MAY pay for a portion (or maybe all). In my case, I paid out of pocket and submitted actual paper receipts. Received about half back. My acupuncturist charges $100 per visit but it’s an hour long session. I would call your insurance carrier first to find out if you have any acupuncture benefits.

Best wishes,
Cindy

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Huh! I should try this!

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kathan55 | @kathan55 | 2 days ago

Hi. My name is Kathy and I joined this group today. Kind of by accident, but so glad I found it!
I received chemo for NHL in 2005 and within 1 month of completing the chemo, developed excruciating pain. The first dx was fibromyalgia, but later I was diagnosed with CIPN. It’s been a very hard journey. I’m on pain management, but the symptoms are progressing and I do get a little concerned.
There are several things that bring me a lot of joy!
First, my two beautiful, precious granddaughters!
And my two daughters and their families.
My faith and hope, and my spirituality. And then music! I’m a big fan of good old rock ‘n’ roll! Seriously, I love listening to music, lots of different types.
Once again, I’m very happy that I found this group!

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | 2 days ago
In reply to @kathan55 "Hi. My name is Kathy and I joined this group today. Kind of by accident, but..." + (show)
@kathan55

Hi. My name is Kathy and I joined this group today. Kind of by accident, but so glad I found it!
I received chemo for NHL in 2005 and within 1 month of completing the chemo, developed excruciating pain. The first dx was fibromyalgia, but later I was diagnosed with CIPN. It’s been a very hard journey. I’m on pain management, but the symptoms are progressing and I do get a little concerned.
There are several things that bring me a lot of joy!
First, my two beautiful, precious granddaughters!
And my two daughters and their families.
My faith and hope, and my spirituality. And then music! I’m a big fan of good old rock ‘n’ roll! Seriously, I love listening to music, lots of different types.
Once again, I’m very happy that I found this group!

Jump to this post

Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for non-Hodgkin's lymphoma to this existing discussion:
- - Chemotherapy-induced neuropathy: What helps get rid of it https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy

I did this so you can read past posts and connect with other members like @cmdw2600 @raebaby @murray3 @3740 @auntieoakley @ginpene05 @jfn and many others.

Kathy, you may also be interested in joining in the NHL and lymphoma-related discussions here:
- Blood Cancers & Disorders Support Group https://connect.mayoclinic.org/group/blood-cancers-disorders/

You mention that symptoms are progressing. Do you mean the symptoms of neuropathy specifically? Where do you experience the pain? Hands? Feet? Both?

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2 replies
3740 | @3740 | 2 days ago
In reply to @colleenyoung "Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for..." + (show)
@colleenyoung

Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for non-Hodgkin's lymphoma to this existing discussion:
- - Chemotherapy-induced neuropathy: What helps get rid of it https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy

I did this so you can read past posts and connect with other members like @cmdw2600 @raebaby @murray3 @3740 @auntieoakley @ginpene05 @jfn and many others.

Kathy, you may also be interested in joining in the NHL and lymphoma-related discussions here:
- Blood Cancers & Disorders Support Group https://connect.mayoclinic.org/group/blood-cancers-disorders/

You mention that symptoms are progressing. Do you mean the symptoms of neuropathy specifically? Where do you experience the pain? Hands? Feet? Both?

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Kathy … I have CIPN from Stage 4 Lung Cancer. I SURVIVED. It’s been almost 3 years since I completed ChemotherapyRadiation. I’ve tried PT. Acupuncture Massages. Pills . Etc. Hands are Stiff all the time. Feet the same.

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1 reply
jfn | @jfn | 2 days ago

Hi,
I have written about all of the things I have done since my neuropathy started 2 years into my chemotherapy for NHL It is funny I was just thinking it was time for another Shockwave treatment. For me it works.

Jfn

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1 reply
kathan55 | @kathan55 | 1 day ago
In reply to @colleenyoung "Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for..." + (show)
@colleenyoung

Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for non-Hodgkin's lymphoma to this existing discussion:
- - Chemotherapy-induced neuropathy: What helps get rid of it https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy

I did this so you can read past posts and connect with other members like @cmdw2600 @raebaby @murray3 @3740 @auntieoakley @ginpene05 @jfn and many others.

Kathy, you may also be interested in joining in the NHL and lymphoma-related discussions here:
- Blood Cancers & Disorders Support Group https://connect.mayoclinic.org/group/blood-cancers-disorders/

You mention that symptoms are progressing. Do you mean the symptoms of neuropathy specifically? Where do you experience the pain? Hands? Feet? Both?

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The pain is unpredictable, moves around to different areas of my body, is different intensities and different types of pain.
Painful muscle spasms, pain all over at one time, back pain ( mid back- thoracic), neck and shoulder pain.
That all started within 1 month of completing chemo.
I got epidural’s for spinal pain, trigger point injections for muscle spasms, and am on pain management.
Later I developed burning sensations on my back and arms, legs and feet tingle and hurt, arms hurt, both knees are almost bone on bone ( wear knee braces). Continue to have initial issues. It’s so confusing. I really have trouble describing everything. Sometimes I wonder if I have fibro as well as CIPN. In 2005, fibro was the initial dx. A trashcan dx back then! Sorry this is such a long reply.

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1 reply
kathan55 | @kathan55 | 1 day ago
In reply to @jfn "Hi, I have written about all of the things I have done since my neuropathy started..." + (show)
@jfn

Hi,
I have written about all of the things I have done since my neuropathy started 2 years into my chemotherapy for NHL It is funny I was just thinking it was time for another Shockwave treatment. For me it works.

Jfn

Jump to this post

I’ve never heard of shock wave treatments. Can you tell me more?!

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1 reply
kathan55 | @kathan55 | 1 day ago
In reply to @3740 "Kathy … I have CIPN from Stage 4 Lung Cancer. I SURVIVED. It’s been almost 3..." + (show)
@3740

Kathy … I have CIPN from Stage 4 Lung Cancer. I SURVIVED. It’s been almost 3 years since I completed ChemotherapyRadiation. I’ve tried PT. Acupuncture Massages. Pills . Etc. Hands are Stiff all the time. Feet the same.

Jump to this post

Thanks for sharing! What helps you most for the pain?

REPLY
1 reply
3740 | @3740 | 1 day ago
In reply to @kathan55 "Thanks for sharing! What helps you most for the pain?" + (show)
@kathan55

Thanks for sharing! What helps you most for the pain?

Jump to this post

A Glass of Wine 😎

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