@aubreeb - Some of your symptoms may not be CAEBV?
Have you tried going gluten free? And have you tried allergy shots or drops? My husband had severe rashes and eczema, and was told gluten can cause it. He did NOT test positive for celiac disease, but did test positive for wheat allergies via a skin test. When he stopped eating wheat, the rashes totally healed. Also, both of us were having severe environmental allergies. We found a doctor who prescribed allergy drops and in about 3 months our allergies were basically gone. I have constant swollen glands too from the CAEBV. So far the only thing I have found to help that is Aleve, vitamin B12, and neck massages.