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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 3 days ago | Replies (615)

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@aubreeb

Hi, all! I have been on a similar journey to you all for the last 8 or so years. I caught mono in high school, and not long after I went to college I became ill with the first of my chronic symptoms. It first started with swollen lymph nodes, migraines/sinus headaches, congestion/runny nose/sputum, constant low grade fever, raynauds syndrome, chronic fatigue then eventually progressed to sinusitis. I felt like my body was in constant over drive 24 hours a day. I tried every antibiotic and steroid I could and found no relief. I was also constantly getting sick with other visurses (strep, stomach virus, flu, pneumonia, etc) After seeing my immunologist/allergist he ran tests that showed my ebv levels were high, and explained to me that also discovered my T cells do not work properly. I was also told my I was also not allergic to anything but dust. He also ran ANA tests and they all came back negative. I then went on to see an infectious disease doctor. All of my tests came back fine. Next stop was an ENT. They performed surgery on my sinuses and that helped a bit, but later the infections came back. These symptoms have remained for the most part, but there have been new chronic symptoms that have been adding on top of the existing over the past few years. I also started to struggle with IBS, extreme migraines through out the week, and dry eyes. The dry eyes have gotten so bad since last year that my eye pain is constant. After seeing several eye specialists I have learned that the symptoms of dry eyes are the response to inflammation. I also now have 1 droopy eyelid. My neck (lymph node) pain has increased, low back pain, joint pain, constant dehydration, ulcers in my mouth, and low brain function/foggy thinking. I’m currently 27 and just retested for ebv. And yet again, it’s incredibly high. I’m starting to read the medical medium book and take it seriously because I feel like the virus is taking over my entire body. My next step is to find a naturopath that knows something of CAEBV as well. Will keep you all posted on the book and scouting out a naturopath.

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Replies to "Hi, all! I have been on a similar journey to you all for the last 8..."

I forgot to add I’m hypsersensitive to heat and cold temperatures.

Also forgot to add I have had a rash on my legs for over two years (mainly on my shins and inner thigh). I have been told it is eczema/hives.

I recently tested with very high levels of EBV, 24 years after suffering from Mono at 16. I was dealing with chronic sinusitis and was sick at least monthly, every bug got me and turned into a sinus infection. Saw a physician who prescribed Acyclovir (Zovirax), often prescribed for Herpes. I take it 1X daily if I'm feeling well and increase up to 3X daily (dosage on the bottle) if I'm not feeling well. It seems to help with getting sick and I've been sinus infection free for almost 6 months. I would still say I need lots of rest (not easy with a 4 yo) but definitely have some improved quality of life with taking this prescription. Would love to hear more about natural remedies as well. Hoping you have made some progress and are feeling better.