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Liver transplant - Let's support each other

Transplants | Last Active: Aug 8 10:40am | Replies (1688)

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Profile picture for yolonda4009 @yolonda4009

Good afternoon,
I am glad to have found this support group!
I am a recipient of a liver transplant almost 5 years post. I received my transplant on 2020! I would like to hear about others and their experiences. I am currently on sirolimus .5 I have recently experienced hair loss. I was wondering if anyone has experienced the same.

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Replies to "Good afternoon, I am glad to have found this support group! I am a recipient of..."

Hi, @yolonda4009, and Welcome to Connect! I'm glad that you have found us and have joined the Mayo Connect on-line patient support community.
I congratulate you for your 5 year with your liver transplant, and I look forward to more conversations with you. By way of introduction, I am a liver and kiedney transplant recipient. I was transplanted at Mayo in Rochester in 2009. Since I live nearly 800 miles away from Mayo, I welcomed the opportunity to join Connect and to learn from other transplant recipients and was happy to be able to add support and encouragement as others navigate their transplant journey. No one's journey is identical - however we are all in this together, and it is so comforting to chat with others who understand abouy liver transplant. I look forward to learning about your story!
Loss of hair is a big topic around here! I experienced hair thinnng after my transplant , and also fingernail thinning/regrowth. I'm going to estimate that it took almost a year for my hair to stop falling out and to begin to be healthy again.

Here are some discussions where others have shared about their hair loss after transplant: Please know that you are welcome to jump right in! And meet others.
-Hair loss after transplant, probably Tacrolimus: Anyone change meds?
https://connect.mayoclinic.org/discussion/hair-loss-after-transplant-probably-tacronlimis/
-After transplant I have hair loss due to meds: Will it come back?
https://connect.mayoclinic.org/discussion/liver-transplant-hair-loss/
-Transplant anti-rejection medications. What's your advice?
https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/
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@yolonda4009, Did your hair recently begin to fall out? Have you changed medications as a possible reason? Overall, how are you and your liver getting along?