Laura, I just read your post and as another adult with CEBV I was curious about the studies you spoke of. I'm always looking for new and old treatments. I hate to accept my conditions, just spent the whole day in bed unable to do anything. That's for passing on any information.

Hello- My son has been dealing with CAEBV for over 2 years and had to be medically withdrawn from his University this past fall, due to chronic illnesses and re-activation. He has gone to Infectious Disease and Immunology Doctor with no help. Our Internist referred him to a Neurologist that specialized only in the Autonomic Nervous System. After she performed a ANSAR test on him, she determined that the EBV has done significant damage to his Nervous System causing all of his horrible symptoms (Migraines, Chronic Fatigue, Chronic stomach aches, Blood pressure and Heart rate issues, Blood flow and clotting issues,dehydration,Insomnia, brain fog, etc) She has put him on Alpha Lipoic Acid (a natural supplement) that is slowly reversing the damage to his cells and healing his body. He is also on a few other meds to control some of the other symptoms while his body is repairing itself. He is slowly coming off of those, but will stay on the ALA long term. He goes for follow up testing every 6 weeks and the last two tests have shown significant improvement with his heart rate and BP issues... his migraines have almost dimensioned and his stomach issues are much better. His energy level has gotten better, but still is struggling with Insomnia at times. He has enrolled back in college for the fall.

Cummings3 - You have submitted so much great information thank you. I feel so bad for your son's struggles. I am going to ask my NMD about the Alpha Lipoic Acid. I am about to try an antibiotic viral - one that is used for shingles and other issues. I have heard they don't work for CAEBV but my NMD has had some luck with it in other patients. Has your son tried any anti virals? Also, what does ALA do to alleve the virus? Thank you.

My son has not tried any antivirals. The ALA reverses the cell damage that the EBV has caused. It is a slow process, but seems to be improving my sons symptoms over time. He does still struggle with the fatigue, but his Neurologist feels that this will improve over time as his adrenal glands start working properly. This virus completely dysfunctions your autonomic nervous system, which in turn causes so many horrific symptoms