SIBO…did it ever go away?

Hi,
Concurrently while restricting my diet from enabling foods. It was several days before a change started and I was provided with a second dose to make sure SIBO had been cleared. I noticed an odd taste which lasted a few weeks after treatment otherwise plain sailing. SIBO is one of the worst things I have had to endure, pain is nothing compared to the discomfort of SIBO and what it wreaks on you. I have had 3 bouts and one near miss getting onto it immediately after recognising the symptoms early. Since taking the antibiotics I have remainded clear and not giving it a second thought. While I'm well aware taking medication there are always side effects and everybody reacts differently to them, the consequences of not medicating can be far more devastating and uncomfortable. I tend to stop medication when I think the job is done but with SIBO there was never that thought.
Massive doses of antibiotics have destroyed my digestive system but kept me alive, I often wonder would death have been the better alternative, but at the time a chance at life seemed the logical way to go. Twelve years on and dealing with many health problems since but there really isn't a substitute for life. I endure multiple health issues daily and their side effects, some the consequences of medication and some not, the really big side effect of medication is I'm still alive, I think I can live with that, in fact I am and I'm still productive!
Incidentaly a severe bout of Champylobacter was the route of all my troubles, starting with dead kidneys for 18 hours and left with just hours to live before the Champo got me. Many times I have questioned my choice particularly with severe flare ups, but on a good day what a stupid question to be asking myself. I'm alive, I can walk, talk and cause trouble, so my wife tells me I'm OK and having a good day. Who am I to argue!
Cheers

My daughter's SIBO stopped reoccurring when she was diagnosed and treated for mast cell activation.

I’ve never heard of “mast cell activation”. Can you please describe that and what the test for it is? I live in the USA and it seems that you have access to much more sophisticated GI practitioners. It’s like no one here understands or wants to treat IBS issues

I’ve never heard of “mast cell activation”. Can you please describe that and what the test for it is? I live in the USA and it seems that you have access to much more sophisticated GI practitioners. It’s like no one here understands or wants to treat IBS issues

I hear you but living with this diarrhea, cramps, bloating and nausea 24/7 lasting for months is excruciating I am afraid to eat anything. I’ve seen 3 different GI docs, had abdominal CT scan, stool samples, Abdominal X-ray, breath tests, and FODMAP test. Tested negative for celiac, lactose intolerance and lysine. I have to cancel social plans constantly which is effecting my quality of life At this point the desperation for an answer has kicked in.

This is probably gonna come across as silly. I don't mean it to be.

Try practicing the first part of the serenity prayer - "Grant me the serenity to accept the things I cannot change."

I never thought about the connection between serenity and acceptance, until I did. It's a simple daily practice - some would call it a prayer. Whatever works.

All the best to you.

Joe

Thanks Joe.. I’ve been doing that for months and sometimes it’s just really trying ……..thanks for reading

I have read several folks here commenting about their SIBO treatments with the various forms of antibiotics. I am not a doc, however, I have read research papers saying that SIBO comes and goes, irrespective of any treatment. I say, do you really want all those antibiotics in your gut knowing the longer term issues? For all we know, antibiotics we took in our earlier years may indeed have contributed to our now suffering with SIBO.