I have never been to Mayo, so I can’t help there, but I always bring copies with me of any records. The staff usually copies everything to their records.
I was diagnosed with Fibromyalgia 11 years ago but most recently ( 1 yr ago) diagnosed with Sjögren’s disease. Thinking back, I think I’ve had Sjögren’s all along…there is a blood test for it, so simple, but I was never checked for it before. The 2 diseases are very similar. I do not have the most common symptoms such as dry mouth & eyes, may be why I was never tested. Now, I follow several Dr.’s on YouTube and it’s so helpful. My Dr. put me on Hydroxychloroquine which has helped tremendously with inflammation I had from head to toe and never knew because I was so used to it. Diet, huge, no red meat or pork only fish, chicken, turkey, no carbs, no sugar, lots of fruit & vegetables. I’m thriving, still pain throughout but so manageable. Lots of live water, meaning some veggie or fruit in your water. I use ginger or celery or watermelon or cucumber…I stay away from citrus as it’s not great for Sjögren’s, irritates my salivary glands…
Fibro, I have followed a similar diet above for many years…carbs would create so much pain it was debilitating…best of luck to you.