I had a CT scan and will not see my doctor till September. Can I ask q

Posted by maria @maroa, 3 days ago

I had a CT scan recently. I will not see my lung specialists until September. I'm assuming a lot of people have lung problems. Anyway I was wanting to ask a question to anyone and see if I can get any answers because I have seen the results on my portal. Is this the place to go to ask a question

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Maria and all. I agree about the lungs. I had a bone marrow transplant April 9th of 2024 and at 1 yr post, there are a number of tests for 'survivorship". One was for breathing. You go in the clear box where you sit down, and they have you breathe in an apparatus. The gentleman has been doing this for decades he said. He also said my test results were very good. I had a consistent even breathing pattern. I think I do not breath deep enough or expel air fast enough and he says the results show good control.
I do feel those who administer these tests have seen hundreds if not thousands of patients. Ultimately someone else reads the results and makes the diagnosis.

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@katgob

Maria and all. I agree about the lungs. I had a bone marrow transplant April 9th of 2024 and at 1 yr post, there are a number of tests for 'survivorship". One was for breathing. You go in the clear box where you sit down, and they have you breathe in an apparatus. The gentleman has been doing this for decades he said. He also said my test results were very good. I had a consistent even breathing pattern. I think I do not breath deep enough or expel air fast enough and he says the results show good control.
I do feel those who administer these tests have seen hundreds if not thousands of patients. Ultimately someone else reads the results and makes the diagnosis.

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Yes I had the telephone box spirometer test. She was screaming pant pant pant haha.
It said I have COPD.
I've been trying to breath and pass a spirometer thinking I would be healed. But last appointment 5 months ago they informed me.....you do not heal from COPD. Gosh I did not know. He said just keep breathing. I am housekeeper and ride a bike to work haha I feel so healthy and 24 I stead of 54 but ....here we are.

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@katgob

maroa-b Did the medical team who ordered the scan say they would not review it till September? That does not seem right. I know they are the best to read to you the findings. We can look up the terminology written, but not the context of how it is viewed in our body. I had my 3- month follow-up scan for a couple spots and will ask them once it shows in the portal what they think. Sadly, I smoke and have live in smoggy southern California, so I expected lung issues of some type.

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Radiology read it same day but my lung specialists isn't seeing me till September.

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Hi @maroa—welcome. You’re among friends here, and this group is a wonderful place to hear how others have navigated similar situations. When it comes to detailed questions about your diagnosis or treatment plan, though, your oncology team (especially your oncologist and nurse navigator) remains the best source of medical guidance.

If your doctor says, “Let’s schedule your next visit in a few months,” that’s usually great news—it means nothing urgent has shown up. (Trust me, a sudden call to come back for a scan in five days feels very different!) In oncology, no unexpected news is often the best news.

It’s also perfectly fine—even wise—to seek a second or third opinion. Good oncologists welcome additional perspectives; medicine is complex, and another set of expert eyes can only help.

Remember, your care team has the full picture of your health history—age, smoking status, fitness level, lab results, and more. Those details guide the decisions they make. While you’re free to share what you like here, online forums aren’t protected spaces like your clinic, so think about what you’re comfortable making public.

From my own seven-year journey with lung cancer, I’ve learned that anxious waiting can be harder than the appointments themselves. So don't do it! Try to take the longer interval between visits as a positive sign, stay connected with your medical team, and keep focusing on living the life you love. You’ve got this! And we’re here to support you along the way.

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Yes thank you. Yes I feel good and positive. I do not have a oncologist yet. I hope I do not honestly. I'm hoping we just get rid of this little booger somehow. I hope you have a wonderful day. I am off today and babysitting my first grandchild ❤️

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@maroa

I meant to say * this CT scan shows no emphasema no bronchitis. Gosh it is just so much to understand about our lungs. It exhaust me. Praise to the people who study them because I just don't understand

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I highlight the word(s) then right click on look up.
Can you get a clinical person at your dr’s office to explain it to you?

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@abob

I highlight the word(s) then right click on look up.
Can you get a clinical person at your dr’s office to explain it to you?

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I fully intend to. I go to see my lung specialist in Sept. I did send a little note to my PCP and asked if she had a oppion on my CT and her nurse messaged me back in our 'portal" and said my lung specialists would go over it with me.
I just keep saying this is ok. I am strong.
I would however like to understand why my CT stated no emphasema no bronchitis because I was told I had unspecified emphasema for 15 months now I've been a strong emphasema girl.
It's all so new to me.
This is all new to me. I do not do any social media. But I was just trying to do what my doctors always tell me not to do and search for my self. (HUGS) I appreciate everyone

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@mamajite

It's not normal to have a big gap between a scan and a follow up doctor's visit to discuss it. Did your primary care doctor order it? Feel free to ask your question(s).

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My lung specialists ordered it. 😉

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@flusshund

Hi @maroa—welcome. You’re among friends here, and this group is a wonderful place to hear how others have navigated similar situations. When it comes to detailed questions about your diagnosis or treatment plan, though, your oncology team (especially your oncologist and nurse navigator) remains the best source of medical guidance.

If your doctor says, “Let’s schedule your next visit in a few months,” that’s usually great news—it means nothing urgent has shown up. (Trust me, a sudden call to come back for a scan in five days feels very different!) In oncology, no unexpected news is often the best news.

It’s also perfectly fine—even wise—to seek a second or third opinion. Good oncologists welcome additional perspectives; medicine is complex, and another set of expert eyes can only help.

Remember, your care team has the full picture of your health history—age, smoking status, fitness level, lab results, and more. Those details guide the decisions they make. While you’re free to share what you like here, online forums aren’t protected spaces like your clinic, so think about what you’re comfortable making public.

From my own seven-year journey with lung cancer, I’ve learned that anxious waiting can be harder than the appointments themselves. So don't do it! Try to take the longer interval between visits as a positive sign, stay connected with your medical team, and keep focusing on living the life you love. You’ve got this! And we’re here to support you along the way.

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Also....your 7 years of being a survivor give me even more hope than I have had. So great for you. Just so glad for you. 🙂

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@katgob

Maria and all. I agree about the lungs. I had a bone marrow transplant April 9th of 2024 and at 1 yr post, there are a number of tests for 'survivorship". One was for breathing. You go in the clear box where you sit down, and they have you breathe in an apparatus. The gentleman has been doing this for decades he said. He also said my test results were very good. I had a consistent even breathing pattern. I think I do not breath deep enough or expel air fast enough and he says the results show good control.
I do feel those who administer these tests have seen hundreds if not thousands of patients. Ultimately someone else reads the results and makes the diagnosis.

Jump to this post

So proud for all you have over come!!! 💪🏼

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