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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: Sep 4 8:39pm | Replies (97)

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Profile picture for 1pearl @1pearl

Hi again @davi0937,

You have company as I was diagnosed with that also, but in February 2025. Do you know if you have primary or secondary myelofibrosis? I think you have primary myelofibrosis as no previous diagnosis which is what I am told I have. Do you have more than one mutation on your NGS testing? I have three one of which is CALR1. Did they do risk analysis of your case and what was it found to be? My O/H told me my risk analysis came back low and very low so no bone marrow transplant recommended for me now but may be in the future. So I have an appointment in August to consult with bone marrow transplant specialist. Was a bone marrow transplant recommended to you now?

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Replies to "Hi again @davi0937, You have company as I was diagnosed with that also, but in February..."

Good morning @1pearl

Yes primary but the MD I just saw here at Mayo said it really doesn’t make a difference in treatment. I have SFSR2 mutation which puts me at Intermediate risk unfortunately. It can mean my moving to AML quicker. I see a different MD tomorrow.