@stuartkjones4 Yes; I've had two follow-up remote visits with Asheeta Bawa at my request following the initial and only visit to the NWMH LC clinic last September. I'll continue to request follow-ups with her, just to be sure I'm not missing out on any new recommendations. So far, it's just the Amantadine, which I'm rejecting since the side effects for many people sound serious, the cognitive rehab, which I did, and yes, a sleep study which I declined, because I sleep fine when I'm not in a PEM period. When I told Dr. K. my worst symptom was the fatigue/brain fog, he said "Many people are helped with this drug" but no details; it was a very short visit with him. I've gotten much more info in general from their monthly Zoom support group for LC clinic patients, which he (and I) strongly recommend. At one of those meetings Dr. K. showed a list of treatments he discourages as "useless." At these meetings NWMH docs show up to speak and answer questions about LC from their perspective; these videos are available on YouTube and you can find the list on the LC Support group site.
I'm finding this thread helpful; let's keep posting our experiences as we (hopefully) get better.