1. < Neuroendocrine Tumors (NETs)

Pituitary tumor symptoms: joint, muscle and body aches

Posted by khauert @khauert, Jan 12, 2020

Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

pamp56 | @pamp56 | 1 day ago

Hi & thank you for your reply! No, my doctors haven't recommended an oncologist, only a neurosurgeon. I just completed an ophthalmology test & they're digesting that info. Its slow going & they don't seem to think anything of it! I guess I just have to wait & see, but I'll discuss an oncologist with them to see what they think. This is all so confusing because I'm trusting others with my care & even i don't understand what the ramifications might be. I'll keep you posted with what I find.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 1 day ago
In reply to @pamp56 "Hi & thank you for your reply! No, my doctors haven't recommended an oncologist, only a..." + (show)
@pamp56

Hi & thank you for your reply! No, my doctors haven't recommended an oncologist, only a neurosurgeon. I just completed an ophthalmology test & they're digesting that info. Its slow going & they don't seem to think anything of it! I guess I just have to wait & see, but I'll discuss an oncologist with them to see what they think. This is all so confusing because I'm trusting others with my care & even i don't understand what the ramifications might be. I'll keep you posted with what I find.

Jump to this post

It would be a good idea to educate yourself about this type of tumor. I encourage you to read the article from the American Cancer Society. I look forward to hearing from you again when you have more information, @pamp56.
Do you have any follow up appointments scheduled yet?

REPLY
1 reply
pamp56 | @pamp56 | 1 day ago
In reply to @hopeful33250 "It would be a good idea to educate yourself about this type of tumor. I encourage..." + (show)
@hopeful33250

It would be a good idea to educate yourself about this type of tumor. I encourage you to read the article from the American Cancer Society. I look forward to hearing from you again when you have more information, @pamp56.
Do you have any follow up appointments scheduled yet?

Jump to this post

Hi, I've been reading about this adenoma & what it's possible issues can be but, after reading comments about issues others are having, I too are having some of them & was unaware the adenoma may be the culprit of these issues. Like I said before, the doctors aren't too concerned because it's non functioning & tests are "normal". However, I'm discovering it may be causing issues from the pressure of the growth pushing on the pituitary stalk, optic nerve & brain. I'm waiting for approval to go out of network to a UC Davis neurosurgeon but I'm staying in constant contact with my GP & Endocrinologist. I'll discuss seeing an oncologist at my next appointment.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 17 hours ago
In reply to @pamp56 "Hi, I've been reading about this adenoma & what it's possible issues can be but, after..." + (show)
@pamp56

Hi, I've been reading about this adenoma & what it's possible issues can be but, after reading comments about issues others are having, I too are having some of them & was unaware the adenoma may be the culprit of these issues. Like I said before, the doctors aren't too concerned because it's non functioning & tests are "normal". However, I'm discovering it may be causing issues from the pressure of the growth pushing on the pituitary stalk, optic nerve & brain. I'm waiting for approval to go out of network to a UC Davis neurosurgeon but I'm staying in constant contact with my GP & Endocrinologist. I'll discuss seeing an oncologist at my next appointment.

Jump to this post

I look forward to hearing from you again, @pamp56

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