← Return to Severe RLS solved for me
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Sleep Health | Last Active: Jul 20 8:31pm | Replies (32)
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Replies to "I'm on the same path. I was seeing a doctor at the movement disorder clinic and..."
I feel the same way, kaydee1958a--symptoms keep sneaking back, sometimes in the late afternoon and early evening, after I've had some "good" nights in a row. I accept that it is a chronic condition, but I sure don't like the fact that there is no way to reliably keep it at bay all of the time! I understand your desperation. Before Suboxone, I developed insomnia and couldn't sleep. I think my subconscious caught on to the fact my legs were going to wake me with pain, so it was afraid to let me sleep. For me, having insomnia on top of RLS was the lowest point. One of my recent trials was after gynecological surgery, my RLS worsened and ultimately I needed a stronger dose of Suboxone. That still doesn't mean all symptoms are now repressed--because they aren't---but increasing the dose helped me. (I do hope to lower the dose back down, in time--but that is a different story). Also, I have the Nidra (which I've been misspelling in this forum, sorry) leg bands. They aren't a perfect answer, either, but they do help. Having spinal stenosis pain on top of RLS is a lot for you to deal with. Maybe, you need an occasional pain pill on top of the Suboxone? Something different to cut off your symptoms completely for a spell. Give you a reset. I think nerves get irritated from the RLS and then are more easy to set off. I saw sleep psychologists twice (did all the sleep hygiene) and I agree anxiety makes it worse. But, for me sleep hygiene didn't overcome RLS symptoms--reducing RLS symptoms helped me sleep better. Please continue to share how you are doing with the sleep issues group!