Hi @kaya1027. I had no idea blood could be so complicated until my own adventure a few years ago. So I completely empthaize with you on trying to find answers to your low EPO and high red blood counts/hematocrit, and some of the related symptoms.
You should be off to a good start with your upcoming consult with the hematologist at the Cancer Center in St Paul. There most likely will be some testing ordered which may help get to the bottom of the issue.

Certainly, you’re welcome to seek a second opinion at Mayo. It sounds like you’re in Minnesota so Rochester isn’t far from the Twin Cities. However, you may find that your current doctor will be able to assist you. If you are interested in requesting an appt at Mayo, here is a link to their home page where you can initiate the request. http://mayocl.in/1mtmR63

Will you please let me know what you find out with your visit?