Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Posted by knissy @knissy, Jun 15 3:51pm

I have had slow growing Lymphoma for 2 years. Found it with a Bone Marrow biopsy. Symptoms are getting bad now. I'm considering immunotherapy. Anyone had that kind of therapy? How did it go?

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My husband had 5 rounds of Rituxan and 4 of bendamustine for follicular lymphoma. Last treatment was May 2023. All good! So grateful!

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Hi all! I went on Retuxomab infusion for RA. Has anyone had the infusion for RA? I seem to have developed Perferal Neuropathy and Neurologist diagnosis, due to absence of other possible reasons, is that it is due to the Retuxomab. Has anyone experienced this?

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Feet feel ok, but a little numb-like wearing socks.
Can't exactly pin it on the Retuximab?

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Hi,
First Im sorry to hear about your diagnosis, I went thru 5 rounds for follicular and so far have been okay but still have port in and they see some rebounding tissue so that sucks. One day a time. Let me know if you need anything feel free to DM me I will try to check.
Best regards,
Matthew

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I took reticular for B cell lymphoma in 2017 and continue to be in remission. I had no problems with the infusions and no side effects. I hope this is helpful

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Hi there, I have Waldenstroms, or what is a slow growing form of non Hodgkins B cell lymphoma. I received 4 Rituxan infusions, one week apart, in 2022. The only side effect I had was extreme fatigue for 3 months, tiredness for 3 more, and it slowly abated. I had such a messed up immune system prior to this! It truly saved my life! I pray you have a great oncologist you trust and can take the leap of faith to give it a try. Blessings and peace! Sue Hanna

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I had that immunotherapy
with chemo for six months when I had stage III NHL
Then year and a half of just the immunotherapy
No return in 14 years

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Profile picture for betzabe @betzabe

Hi all! I went on Retuxomab infusion for RA. Has anyone had the infusion for RA? I seem to have developed Perferal Neuropathy and Neurologist diagnosis, due to absence of other possible reasons, is that it is due to the Retuxomab. Has anyone experienced this?

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I've had 3 sessions of Retuximab plus IvIg for Sjogren's and had no effect, good or bad from the Retuximab.

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Profile picture for suerich1989 @suerich1989

Hi there, I have Waldenstroms, or what is a slow growing form of non Hodgkins B cell lymphoma. I received 4 Rituxan infusions, one week apart, in 2022. The only side effect I had was extreme fatigue for 3 months, tiredness for 3 more, and it slowly abated. I had such a messed up immune system prior to this! It truly saved my life! I pray you have a great oncologist you trust and can take the leap of faith to give it a try. Blessings and peace! Sue Hanna

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Sue thank you for your reply. After 4 infusions and 1 pint of blood I feel the fatigue. It's only been a little over a week . So your reply is encouraging.

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Profile picture for irishnanny3 @irishnanny3

I had that immunotherapy
with chemo for six months when I had stage III NHL
Then year and a half of just the immunotherapy
No return in 14 years

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That’s amazing! I just had it this week for my regimen for LPL and Cryoglobulinemia Type 1.
I remain hopeful!

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