Intrathecal Pain Pump

I have had my fourth pump put in and wonder if I should have just had it taking out. I think they talked me out of it because they like the money. I feel like a number with nothing to add after twenty years. Also have lack of trust. So sick of doctors and pain that got worse with surgery then after a pump. So frustrating. Who can you trust and rely on? I’m 70 and feel what’s the use.

Yes, you are in a Guinea Pig Line. Doctor that does the surgery won’t even talk to you if you don’t at least get a shot. There PA fills the pump and answers questions. Nothing but lines of people. I wise I never received the pump. All their shots did nothing but make me worse. Then they charged you an arm and a leg. Once you get a pump they own you.

I had a Medtronic intrathecal pump for 6 years. I developed a rare condition called arachnoiditis, an inflammation of the sac surrounding the spinal cord. I am unable to sit for more than 10 minutes without pain and unable to sit for more than 45 minutes to an hour at all. I am much worse off than before I had the pump placed. I realize that this complication is rare, but I think patients need to be aware of it before proceeding with pump placement.

Hi Archie here—

I am so sorry to hear this and to know your experience. The pump (Medtronic intrathecal pain pump) is and has been a God-send for me. Since 2009, when put in, I have never needed oral medication!! If you have trouble with movement, surgeons can insert the pump into a type of pouch that secures it. One of the benefits of having a pump is that you get only 1/300 th of the amount of medication— it is being dripped right on the nerve roots. This is why my 40ml pump has been sufficient for almost 20 years. I’ve had 3 replacements— batteries wear out — and am due another next year— but I am keeping my pump. Sure, there have been some increases in the amount of medication flowing because my adhesive Arachnoiditis is progressive, but they easily reprogrammed the pump and gave me more boluses, which gives me even more control over my pain. I keep a diary, I stay with the same Pain Management group, and I prepare for each interaction with them by having a written list of questions or concerns. I honestly can’t bring myself to believe that the doctors are doing this service just to make money, or that we are on an assembly line. Sure, the delivery of healthcare has evolved over the years, but doctors have trained for years to treat us. At 80 years old, I should know—after literally 100’s of procedures, I’m still looking forward to tomorrow morning.
Best,
Archie

FYI---I take Indomethacin for my Arachnoiditis pain. It really helps. Must be taken with food. This drug is part of Dr Tenants protocol.