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Headache and Migraine Group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, Feb 27 1:49pm

Welcome to the Headache & Migraine support group on Mayo Clinic Connect.

If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.

Take these steps to participate in the group:

  • Follow the group.
  • Browse topics.
  • Use the group search to find answers to your questions.
  • Introduce yourself.

Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

nsandhya | @nsandhya | 2 days ago
In reply to @lisalucier "I'm tagging @danny5 @dlydailyhope @richardfrancine @jenapower @grandmar @benchi300 @nathalietremblay @mercuryrose @gracie2020 @faithann64 @jalo @docb99 @mlpults @joannbar..." + (show)
@lisalucier

I'm tagging @danny5 @dlydailyhope @richardfrancine @jenapower @grandmar @benchi300 @nathalietremblay @mercuryrose @gracie2020 @faithann64 @jalo @docb99 @mlpults @joannbar @taterjoy @gussie @mollyquah @suzbuck11 @jals @coachgail29 @daylily4me @linamend @mikaylar @ksdm @mcgrathcreative2 to get the new Headache & Migraine support group started. You've all mentioned headaches or migraines previously.

How are you all doing with your headaches or migraines? Do you have any suggestions for new members or pitfalls you'd encourage them to look out for?

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I'm having migraine headaches since last almost 15 yrs now. However, what surprised me was this constant throbbing pain behind my right eyebrow and eye on a daily basis from 6.30am to around 12noon continuously for 12 days. Cold compress, coffee shots and painkillers helped to some extent but affected my daily work. It stopped after 12 days and am dreading when it will recur

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nsandhya | @nsandhya | 2 days ago
In reply to @ripfence "I'm a 55 year old male who has had cyclic cluster headaches since the late 80s...." + (show)
@ripfence

I'm a 55 year old male who has had cyclic cluster headaches since the late 80s.

Over the past few decades I've tried virtually every medication treatment (both on and off-label) on the market. The only ones that seem to offer relief are abortive vasoconstrictors such as triptains and high dose oxygen.

As I've aged, I've noticed my cycles are shorter but the intensity of the headaches that occur during those cycles are worse.

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Please let me know if u ever come across a solution to this problem. I had a very bad episode recently when I had very bad pain behind my right eye and eyebrow daily for almost 5 hrs and 12 consecutive days in a row.

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1 reply
ripfence | @ripfence | 1 day ago
In reply to @nsandhya "Please let me know if u ever come across a solution to this problem. I had..." + (show)
@nsandhya

Please let me know if u ever come across a solution to this problem. I had a very bad episode recently when I had very bad pain behind my right eye and eyebrow daily for almost 5 hrs and 12 consecutive days in a row.

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That sounds like classic cluster headache symptoms. My heart goes out to you.

Vasoconstrictors help me but they have their own set of worrisome issues.

There are a lot of newer preventative medications on the market for migraines that may work and I think at least one that's got an approval for cluster headaches. They didn't help me but they may help you.

One thing I'd suggest is to try to find what if anything triggers your episodes and remove those. These could be food, food additives, medications, alcohol etc. in my case, anything with vasodilation properties can trigger or worsen a headache.

Some people seem to have issue with things that elevate serotonin or histamine. Hopefully you can narrow down your triggers.

I hope you feel better soon

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bernieboy | @bernieboy | 10 hours ago
In reply to @docb99 "Hello I’m a 75 year old female. Retired professor. Grandma of 3. Mom of 3. I’ve..." + (show)
@docb99

Hello
I’m a 75 year old female. Retired professor. Grandma of 3. Mom of 3.
I’ve had migraines for over 40 years and tried all the typical interventions. Imitrex worked for me.
My headaches morphed into horrid and constant head and neck pain and looked a lot like occipital neuralgia. I had occipital and auricular nerve injections that did not help much for two years. I could not sleep laying down at all.
The headaches then began to occur every morning and I was taking daily imitrex and using an ice pack every morning for an hour to relieve the pain.
My neurologist suggested Botox because the headaches were daily and I would be covered by Medicare.
I’ve had two sets of Botox injections so far and it’s better. I can sleep laying down and I’m not waking with a headache.
That’s my story.

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I have had headaches for over a year & I had Botox twice so far no help.I takeSpironolactone 25 mg. for B.P. Can this be causing my headaches ?

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