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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: Jan 3 1:06am | Replies (638)

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@airsleeper

Mayo says it’s not a chronic virus. However, another doctor in Texas says research shows otherwise. Idk. Looking back, I’ve had these symptoms for 15+ years but was never diagnosed. I finally had to retire early because I would sleep all weekend and then make it to work Monday and Tuesday and maybe half day on Wednesday. Then I’d start all over after sleeping Thursday, Friday, Saturday, and Sunday. Mayo dismissed many diagnoses and I am feeling better, but it’s a total management thing. My daughter is better than me. Doctor says it’s because of the age. I wish your son the best. I highly recommend a visit to Mayo! I’d be glad to talk with you more about our symptoms and various treatments we have tried.

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Replies to "Mayo says it’s not a chronic virus. However, another doctor in Texas says research shows otherwise...."

Thank you for posting. I have been reading every post that comes online about EBV. I was diagnosed about two months ago however, I believe I have had this most of my adult life. I am making an appointment with the Mayo Clinic in Rochester. I'm not too helpful since I haven't read anyone with real positive results after getting tested and diagnosed at the Clinic. I read that you do recommend a visit to Mayo but you indicated that they didn't recognize the disease as a chronic virus. Now that some time has passed was the trip to Mayo worth it? I hate to travel to the mid-west in the winter.