← Return to Treatment for chronic Epstein-Barr virus (EBV)
DiscussionTreatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: Nov 26 9:26am | Replies (635)Comment receiving replies
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Sorry to hear about your son. Both my daughter and I were diagnosed with EBV about six years ago. She struggled but did complete her doctorate degree. I continued working, but had to finally retire four years early in 2014. I’m convinced EBV caused me to need a pacemaker and infected other organs of my body. However, with lots of doctor visits and numerous treatments, I’m now able to participate in more family activities. This illness is very much a management issue. If you haven’t read the Spoon Theory yet, google it and you’ll get a better understanding about how your son feels. My daughter works full time but is exhausted. She spends at least one day of the weekend sleeping although she gets 8-10 hours a night during the week. I sleep 8-13 hours a night and sometimes take naps during the day. We both take prescribed stimulants to keep us functioning during the day. My lifestyle had to change drastically because retirement fixed income and my stamina to do anything physical is so low. However, I have improved greatly these past three years. I went to Mayo Clinic in August. Although they don’t recognize EBV as a chronic condition, they were able to rule out many other previously diagnoses and took me off most of my prescriptions. I highly recommend going to Mayo in Rochester. They won’t stop searching for answers until they have found them.