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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: Nov 26 9:26am | Replies (635)

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@vinceernst

Hi, my name is Vincent Ernst, I contracted Mono between 2014 and 2015 and have a persistent, on and off again feeling of lethargy and general weakness, in addition to other vague symptoms. It is unclear when exactly I contracted the infection since only an EBV anti-body count tested in early 2016 confirmed that the infection had taken place "recently", and perhaps at this stage this had already become chronic. To provide some context, I first started feeling unwell in Autumn 2015, when I noticed that I was frequently feeling sick, but not seriously ill with any fever or severe symptoms. It was like a mild cold every two or three weeks. During this time period I was completing senior year of high school as well as studying for my IB Diploma and I didn't miss a single day of school. I also performed as a DJ at parties, whilst sick and also drinking alcohol. This stress never seemed to impact my symptoms. This phase lasted until my 18th birthday, in mid February 2016 and suddenly ceased for some time until early may when I contracted a bad flu and was then hospitalized with double Pneumonia, thus missing my Final HS Exams. In late 2016 there was a second, three month phase where my symptoms worsened and didn't go away. I was treated homeopathically with 2LEBV, antiviral, immuno-stimulating drug, as well as other supplements. After taking some newly prescribed probiotics at the end of this three month period, I miraculously recovered within a few days. However, this year I still got ill frequently, always preceding or following events of high stress and alcohol consumption. I also got Pneumonia again, however far less severe than the first time. As of this writing where I am again feeling ill, there is no measurable fever, only a little yellow phlegm and a feeling of mild depression, malaise, light headedness, feeling hot and cold as well as a yellow discolored tongue. Every doctor denies that I have a persisting infection, except the homeopathic one who treated me, with temporary success. I might even describe myself as a hypochondriac, feeling scared and stressed of possible sources of infection since the events of the last two years. In my childhood I was rarely Ill, about once or twice a year and now I frequently have 4-7 day periods of feeling unwell, and every now and then serious illnesses such as pneumonia. I'm 19, attending university in Florida and I'm afraid that this will have a severe impact on my future adult life. A psychosomatic doctor even diagnosed me with "suspicion of personality disorder, namely recurring, currently repressed, depression" which is, excuse my French, bullshit. I feel a little helpless, but I'm not willing to give up and I want to improve my ok-mediocre quality of life before it gets worse and turns into CFS!

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Replies to "Hi, my name is Vincent Ernst, I contracted Mono between 2014 and 2015 and have a..."

@vinceernst your case sounds similar to mine as well as @jonnybear619 's. Sounds like you are getting bacteria in if you're getting one pneumonia. I too have had walking pneumonia twice as an adult and countless infections (doctors only recently started testing my sputum to see if the infections are bacteria). I replied to @jonnybear619 on this thread as he says he's getting pleghm after physical activity. Same for me and I was also getting infections after social drinking with friends on weekends. I have low immunoglobulin levels which might be part of the problem as I've noticed going into crowded places or airplanes with lots of people I can get systems of infections starting even if I'm not drinking. Wondering if you have had your immunoglobulin levels tested and functionality of your immune system such as t-cells, b-cells, lymphocytes, neutrofils, etc.?

You are right: it is bullshit! I've lived with EBV for 22 years. I identify with so much of your story. Currently I'm living with a fairly severe recurrence. My GP here in Tucson wanted to treat me for depression. An infectious disease specialist wouldn't even see me. A rheumatologist suggested COQ10 -- it hasn't helped. Lysine also hasn't helped. In the past routine B12 shots and chiropractic adjustments helped a lot. I had a period when the muscle/joint discomfort turned in to full body pain; then I went for 10-12 chiropractic adjustments. They had a quick and positive (long lasting) impact. As a result, I have just found an acupuncturist here in Tucson. My first appointment is next week. If you choose to try acupuncture, be sure he/she is certified. I wish you well, Vincent. This is not an easy illness to deal with. In the 20 years since I was first diagnosed, doctors seem to know more about the disease and its relationship to other illnesses. There still have been little advances in its treatment. JB