Hormone Treatment Experience

Of course the 'ADT light' will be explained by the MO. I have seen ST-ADT and LT-ADT. Short term might be as low as 6 months and Long term ADT 18-30 months.

Yesterday I had nine hot flashes. This is after being on ADT for eight years. At least seven of those my head and face were totally soaked and my chest got wet. I’m getting a Depo-Provera shot as soon as possible, it really controls the hot flashes when on ADT, not so much if I also need Zytiga.

At night my Wave 2 device stops the night sweats, I used to get them almost every night. When the daytime hot flashes are this strong the device can only help minimally. When I get a milder hot flash. the device does stop them. That’s why it only works well for some people, they don’t realize the benefit of It at night.

Have you noticed that even a little bit of stress will bring on a hot flash. I guess it’s fortunate. My life is pretty much stress free. Then you watch the news!!!

I am on Orgovyx

Somebody’s talking to themselves. Do you need to see a doctor?

Looks like it’s something you always have to stay on top of to manage the side effects

Yesterday I had nine hot flashes. This is after being on ADT for eight years. At least seven of those my head and face were totally soaked and my chest got wet. I’m getting a Depo-Provera shot as soon as possible, it really controls the hot flashes when on ADT, not so much if I also need Zytiga.

At night my Wave 2 device stops the night sweats, I used to get them almost every night. When the daytime hot flashes are this strong the device can only help minimally. When I get a milder hot flash. the device does stop them. That’s why it only works well for some people, they don’t realize the benefit of It at night.

Have you noticed that even a little bit of stress will bring on a hot flash. I guess it’s fortunate. My life is pretty much stress free. Then you watch the news!!!

I am on Orgovyx

Jeff, I break into a sweat every time I watch the news - and I’ve been off Orgovyx for months!🥵😵‍💫😩

ArteraAI (I assume you mean ArteraAI and not AlteraAI) is a genetic test to determine whether someone has a biomarker that indicates he would or would not benefit from ADT. I had this test in my diagnostic phase and the test was positive so I went on a 6 month regimen of Orgovyx, 2 months prior to proton treatment, then during 25 sessions of PRT and then after. I finish the Orgovyx next week.

I have had hardly any issues with the Orgovyx. Some very short term warm flashes. I say warm as I don't get very hot, break our sweating or anything, just get a little warm for 10 - 15 minutes. This seems to have gotten a little more common as the treatment has gone on, but still not often and does not affect my daily life in any way. The only other noticeable side effect is a loss of libido. Since I don't have a partner that hasn't been an issue either, although I have been on a couple dates recently and when kissing good night the hardware was working fine.

Although I will be glad to finish ADT, if my care team thought 6 months more would be beneficial I would have no qualms about continuing on.

My brother had the same problem. He had one six months lupron shot And a year after the 6 months he still had hot flashes, not as many however.. Testosterone came back real slow, he was 77, a factor sometimes.

With Orgovyx you are supposed to get testosterone back much quicker, but it just varies all over the place it seems. I don’t remember how long you were on it, it is expected that testosterone comes back slower if you are on it longer. I’m not so sure about that rule after how relatively quickly it started coming back for me, after eight years of ADT. Also, after hearing different people talk/write about their testosterone recovery, the results aren’t consistent.

Did you get a testosterone test with your last PSA? I suppose you already have it added to your PSA schedule, so you at least see where you’re at regularly. Are you over 100 yet?