← Return to My Parkinson's life is so confusing - this is not easy.

Discussion
Comment receiving replies
Profile picture for evynlouise @evynlouise

This is very confusing and I hate that that I have to track everything such as food, when I go to sleep, how much water I drink, whatkind of mood I’m in etc. And 90% of the time you still can’t figure out what is causing the side effects. just when you think you’re starting to feel normal Something else comes up. And it’s generally another side effect I have good days and bad, but unfortunately, I have more bad than good. I have not slept a full night since I got this. Surprisingly though I’m not .I have had to cancel plans at the last minute because of the way I feel. I hate the panic attacks that I get. And I really hate the restless leg, but I have to say is what I hate most is what it appears to be doingto my kids. I’m a single mom and raised my kids alone and was very independent now I have to depend on others. And I can see the worry on my kids faces. The really sad thing is I’m stuck with it. There’s no cure so I’m trying to make the best of it. It’s probably one of the worst things I’ve had to deal with in my life. and I really hate when they say the medication helps you manage the quality of life. I’m sorry I don’t see any quality in
This way of life. Today has seemed to be one of the better days, but that’s always something to change when I take my next dose but day by day I pray it gets better

Jump to this post


Replies to "This is very confusing and I hate that that I have to track everything such as..."

Hello @evynlouise and welcome to the PD support group on Mayo Connect. I'm so sorry that this diagnosis has been so difficult for you. How long ago were you diagnosed? What type of therapies have you had? For example, medication, physical therapy?

One of the most important therapies is regular exercise. I know it is difficult to think about movement when you don't feel well, but it is so important both physically, cognitively, and emotionally. Here is a link to information from The Davis Phinney Foundation about the importance of exercise, https://davisphinneyfoundation.org/resources/exercise-and-parkinsons/

Could you share more about your activity level?