Replies to Hi davi0937, Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that…

← Return to What are treatments for myelofibrosis?

Discussion

Blood Cancers & Disorders | Last Active: Sep 4 8:39pm | Replies (97)

Comment receiving replies

@1pearl

Hi davi0937,

Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that mean you had ET for 17 years since you wrote that your platelets were high in 2008. Did they determine your mutation? I do not think CALR was even known of in 2008.
Please do share what you learn in a week from your physician visit.

Jump to this post

Replies to "Hi davi0937, Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that..."

davi0937 | @davi0937 | Jul 16 2:47pm

Thank you- I will! I am hoping to have a BMT soon. I’d rather do that than a clinical trial. The bone marrow biopsy done in 2020 was inconclusive - so not diagnosed with anything. When I saw my oncologist hematologist in 2013 my platelets were normal.

VIEW AND REPLY