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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 3 days ago | Replies (634)

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@kanaazpereira

Hello @gracie927,

Welcome to Connect, and thank you for sharing your history. I can imagine how frightening these symptoms must be, especially after doing all you can.

First, I'd like to give you some information for contacting Mayo Clinic. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

I would encourage you to view some of these active discussions on Mayo Clinic Connect:
– Male, 23, Possible Autoimmune Issues, Difficult to Diagnose: https://connect.mayoclinic.org/discussion/male-23-possible-autoimmune-issues-difficult-to-diagnose/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/

I'm also tagging @dash99999 @mcpucho @sebley12, @brie87144, @wesbig, @crhp194, @debdeb, @meghan33, @emmie @jatl @cheryldotson @jenchaney727 @juliemd who have experienced some similar challenges (fatigue, autoimmune issues, EBV), and can likely relate.

@gracie, you might also want to look at this conversation about menopause in the Women's Health group:
Living with early menopause - let's chat: https://connect.mayoclinic.org/discussion/living-with-early-menopause-lets-chat/

I'm glad to know that you may want to get an opinion from Mayo Clinic; may I ask what did the culture show? Did your doctor recommend a high-protein diet?

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Replies to "Hello @gracie927, Welcome to Connect, and thank you for sharing your history. I can imagine how..."

Please go to Mayo. You can be sure the doctors there will look at the whole picture and will find out your problems. I cannot recommend Mayo enough. Mayo uses a team approach with different speciality doctors conferring about your case. N need to go to one doctor to another at home and waste time and feel terrible. All the tests you need can be done at Mayo. So sorry for all your misery. Good luck to you!

The throats culture showed no bacteria. I have been on a very high protein diet since January after an abdominal reconstruction due to a soccer ball sized hernia that protruded in late November of last year. I have also been very intentional about resting, exercising, staying away from processed food and drink. I also drink a lot of water and pray daily for healing. I will not give up this time. I do not want a diagnosis of illness, but if something is not well, I want to tend to my health the best I can because I want to live and enjoy my family. I can not tell you how grateful I am that someone has listened and given me hope. God bless all of you!

@kanaazpereira Thank you so much for all the information. I thought I had responded back to you specifically. Yes, I am on a high protein, actually, almost all protein diet at the moment. As I prepare to officially go back to work tomorrow, I have had so many exhaustive relapses these last three weeks. I am a teacher and have been placed at a new school. Trying to get my room ready has been such a chore. I see my surgeon in two days to see if i have some sort of complication from my abdominal wall reconstruction surgery that was done January 31. Tomorrow officially starts my school year, and I don't feel that I can tell anyone about what is going on because I have learned from past experiences that 99.9% of all people - family, best friends, and Christians eventually just look at you as lazy or deranged because pushing through is not something I can do most of the time. This is especially true for me as I get older and get out of a schedule, or over due things physically or emotionally. My throat is still sore along with headaches, neck aches, and back aches. Today, after working going through my classroom books and dust, even my eyelashes ache. I got up and took my shower to head to school and had to just lie down after bathing. This is something new along with some other symptoms my husband and i have noticed the last month or so. My vision and light sensitivity is changing again. I just got my new prescription in April, and I cannot see well out of my glasses except to drive. I have also noticed a twitching in my left leg when sitting, and my bladder IC is driving me crazy regardless of diet, meds, or rest. I did fill out an appointment form, and right now I am praying I get seen. I have also been researching different blood and genetic testing possibilities to find answers. Hopeless is set in. I am so discouraged because I had so hoped the set back would be better if I rested more and ate better. But, if anything is true, I am worse all over. I hate to be a Debbie Downer, but I know my husband, children and my dad all need me. And, I want my life back. If I can't live my life then what am I here for? You know what I mean?