Thank you to those who shared their story. It is quite evident that I need a second opinion with a qualified doctor in MPNs who can explain my situation to me. Strangely, I feel what I exactly have is not exactly known by my O/H and my Medicare Advantage Plan has no MPN specialists, just bone marrow transplant specialists. I do know my O/H said she talked on the phone with the pathologist who read my results who said my “bone marrow biopsy looks more like primary myelofibrosis”. Then I received a message in my kp.org from my O/H saying that “you might be transitioning from prefibrotic myelofibrosis”. The day of my bone marrow biopsy only I was required to do STAT blood work that turned out really strange with lowered platelets by about 400 but still high and slightly lower than normal hemoglobin, 11.1. All five other labs I have done from December 2024 to May 2025 show higher platelets and normal hemoglobin ranging from 11.6 to 12.7. My other cells fluctuate greatly too and graphed look like zig zags which make impossible to draw to straight line through the points. This all seems so strange to me as I have done nothing differently and do not take any meds, no Hydrea ever in my life! I had never even heard of it until it was prescribed to me my my O/H in January 2025 and 500 mg twice each day seemed quite high to me to begin with. I never even filled it! I now take low dose daily aspirin as I do have high platelets. I am great full to feel fine with no symptoms and my normal good energy; however, it is very frustrating for me not to understand how my diagnosis is being determined as well as not to to feel comfortable with my O/H and her knowledge about what I have. She doesn’t like to be questioned I know! She referred me to bone marrow transplant specialist but I am not sure that is who I should be seeing next. I certainly do not care and would never consider doing a bone marrow transplant without knowing what I exactly have going on! Thank you for listening and sharing. Have a blessed day doing what you enjoy.