I am desperate. I am 47, and I had Mono in December 1987 so bad that I was in the hospital for a week needing platelets. At first, I was scheduled for a bone marrow test because the GP who put me in the hospital wasn't sure I had leukemia. The lab tests came back with a positive EBV, so they begin to give me lots of meds and platelets to help build my blood levels back up so that I could move. I was covered in peteckei and was not allowed to move unless two nurses were with me because of the risk of rupturing something.
I had been sick for 3 months, and my parents finally decided to get a second opinion. I am so thankful they did. Two years later, the same thing happened when I got pregnant. I felt horrible and was put back in the hospital because I couldn't stop bleeding and lost that baby. I had had a sore throat, headache, and fatigue for weeks before this.
In 2002, I had a Roux N Y gastric Bypass to lose weight. I weighed 325 pounds at 5' 4". After the bypass, I felt amazing. I might add I had two live births and never had another diagnosis of mono again.
My GP was so shocked that all he could find that second time in the hospital was EBV.
In 2006 I had to have a hysterectomy, and since then, I have been constantly dealing with immunity and fatigue issues. My bladder was torn and instigated interstitial cystitis. That in itself has been absolutely horrendous to finally find a docotor who could help with it.
Two years ago I was mono positive again. I am so discrouraged because not one specialist I've been to takes me seriously. Depression has become a daily battle, and now I am in full blown menopause. I have had to miss so much work that I finally took a leave for 14 months in hopes to rest and be able to work again.
I know menopause can cause lots of similar issues, but after a very long visit with the best GYN in my area, he explained to me that once I began getting estrogen back in my system, those symptoms would calm down. They haven't. I used to be able to lie in the sun for hours, now the heat absolutely make sure me nauseas and weak. I also take a ton of minerals, vitamins, probiotics and stay completely away from processed foods, sugar, dairy, and vegetables. I am on a high protein, very low carb diet.
I'm a teacher and have been so excited to hopefully be able to go back to work. But the last 7 weeks I have had a very sore, swollen tonsil, swollen glands, headache, and extreme fatigue.
My GO has run me through 3 different antibiotics, and she took a culture. It is vital, so I am to just rest.
I'm so exhausted trying to find someone who will help me, and I really want to come to Mayo and see someone there because I have been told that Mayo doesn't just look at one piece of the puzzle.
Over 23 doctors in my area have done little to nothing to help me.