Hello Jonathan @jonnybear619 - I got your private message but thought I would answer you here as others in the group may also have some ideas that might help. You mention you have been sick for 10 weeks. Have you seen a doctor for your symptoms yet?

The reason I ask is that with my first occurrence of polymyalgia rheumatica the pain was unbearable by the time I sought help. I had to crawl up the stairs and use a walker and my wife drove me to my doctors appointment. It kind of crept up on me a little at a time. I was put on a low dose of prednisone and was finally able to get off of it when the PMR went into remission. It was in remission for 6 years but started back up last summer.

Mayo Clinic website has some possible causes for the type of fatigue may be experiencing listed here - http://mayocl.in/1JPq7NK. If you haven't seen the doctor about the fatigue, sleeping a lot and just being exhausted all the time, I would definitely try to see your doctor as soon as possible.

Please don't give up! You are your best advocate so I would recommend keeping a daily log of how you are feeling, activities, hours slept, etc.. I would also recommend writing down any questions you may have for the doctor as it is so easy to forget when are actually with the doctor.

John

Jonnybear619 are you still feeling bad? My 25 year old son has been dealing with this for 11 months not told he has adrenal fatigue and his EBV numbers are still high. Was I'll with the flu in December which was especially scary because his immune is so compromised. My son works full time then sleeps. He's getting depressed now because every dr we have seen just says this will go away but all admit 11 months is way to long to be expecting this.

I have been ill for six months, however I believe that I have had the EB virus all my adult life. I am now in my 60s. I manage everyday but have not regained my energy level. I'm constantly seeking more help but have not found or been set up with a treatment plan. Today I get the results back from a nutrition panel that was done last month. I've been to many doctors but haven't found an expert in the field. I too am hoping for an improvement. I went from being a very energetic person and having periods of fatigue/illness to now being fatigued all the time. I keep praying that by me seeking out alternative solutions that I'll find something to help boost my levels of fatigue. All my life I've lived a health life style so that isn't a great deal I can change. Most of the diet suggestions was how I lived my life. I have added additional supplements and essential oils but I haven't noticed any changes. I live with morning head acks, brain fog, blurry vision, fatigue and sleep most nights ten or eleven hours. I don't nap during the day because I'm not sleepy but I am extremely tired and want to crawl back in bed all afternoon. Sorry I can't be of any help to your son but I will keep perusing my issues and share any solutions I come across them.

Thank you for your response. Those are the same symptoms my son has been having for the past 11 months. Since you are in your sixties, have you looked into hormone therapy. I'm 52 and for the past year I have been doing pellet therapy to help with energy and wow it is really helping me. The estrogen and testosterone are put in a pellet and I get it implanted every 3 months. The progesterone is given in pill form at night. My problems I was having were from menopause but this could be something for you to help with energy. My testosterone was undetectable when I started the therapy. Literally turned back the hands of time for me. I know this is off topic but worth looking into.

Thank you for your reply back. Yes and Yes. I too went to a Wellness Doctor who has shot me up with hormone pellets and I take progesterone. I do see some positive results from this therapy however it has not helped me with my fatigue. I just came back from an appointment with this doctor and I now have an additional supply of micro-nutrients that I am going to start today. Like the hormone therapy these supplements are to build up my immune system. I have been talking numerous supplements but I now just added five more. These supplements were recommended based on nutritional blood work that was done. I'll keep you posted if this helps my situation. The doctor I saw said there wasn't anything else to do except to build up my immune system and rest.

@jonnybear619 I just came across this posting and you're situation sounds eerily similar to mine. I've never (that I'm aware of) had mono but have had an EBV infection (based on labs in 1999). I also have had low IgM immunoglobulin levels since 1998. Last year I found out I also have low IgG subclass 1 too. In addition to the general fatigue symptoms and struggle to do day to day activities, including work and brain function I too have been very active most of my life but decades ago i starred to notice I would feel like I was catching a cold after running. Now when I run or do anything physical (hiking, mt biking, running, cleaning my condo, walking around shooting photos for hours, etc) my sputum will turn yellow or brown in the day after doing such activities. I was wondering if you also have low immunoglobulin levels? Also if anyone else on this thread has low immunoglobulins levels please comment. My doctor has been testing my sputum when I start to get signs of a respiratory tract infection and just in last year and half I've had 6 positive bacteria infections - 4 or 5 different types of bacteria. For many years now (over a decade) I've felt like I can even tell the difference when I get over one infection and when the next one starts since any physical activity will start symptoms again. My doctors (and I've been to probably 50 + specialists on my life since these symptoms first started in 1998) can't seem to figure out what to do and really what is causing this. They think the low immunoglobulin levels are a factor but they offer no answers to making me feel better and stop the infections. I have recently ran across research by Dr Nieman at App State University that shows exercise can suppress the immune system and I asked him if he has done any studies on individuals with immunodeficiencies or EBV infections but he hasn't. He said that such research might be valuable. If possible would you be willing to have a conversation off this feed as there's so many more specifics that I think we should discuss to potentially help us get answers.
Thanks!
Roger

Jonathan: I've lived with Epstein Barr Syndrome for 22 years. Back then, when my doctor diagnosed me, we started routine B12 shots for energy; I went to a chiropractor for the muscle/joint discomfort (my MD wasn't pleased with this but also told me I would have to find what worked for me). When the discomfort became more pervasive and more painful, I had acupuncture treatments for 10-12 weeks. I think the routine B12 and chiropractic adjustments helped; but with acupuncture I saw the biggest change. After 10-12 treatments I was much more comfortable physically and had a lot more energy. When I retired (11 years ago), I started 10 years of good health, no B12, no chiropractic adjustments. Then 14 months ago EBV again took over. And it now has a good hold on me. I have been to a rheumatologist -- no help. Infectious disease specialists wouldn't even see me. Since I've moved across country, I have a new doctor whose initial response to my extreme fatigue was to treat me for depression. I know better! I've been to two specialists in the last few months. Had they had experience or success treating EBV, I wouldn't hesitate to follow their advice. But recently a rheumatologist prescribed Celebrex and Cymbalta. Together they are very expensive. And since I had good luck before with acupuncture, I'll spend the money there. I have my first acupuncture appointment on Wednesday next. Hope I've been of some help. JB

Have you had the gardasil vaccine for HPV? My son was in every sport since kindergarten, very athletic. He got that vaccine at 13, hes been sick ever since, hes now 20. Thousands are are after having it and testing positive for epstein Barr, pots. Bartonella, lyme, many many more.