Thank you so much for all of this great information! I having been reading a lot about natural supplements and we are willing to try anything to help with his symptoms! He is not currently on any medication, but I have been giving him vitamin C daily and a diet rich in protein. Thanks again for all of you help and insight!!

Hi @jenchaney727! Thank you so much for this information. I just was tested for EBV after 20 years of suffering from fatigue. My naturopath says I have a chronic infection so I will share this protocol with her.

Hi @rengher. Welcome to Mayo Clinic Connect. Sorry to hear you have suffered for 20 years. That's a long time.

Let us know what your naturopath says. I'm interested to hear what she will do with the information and what will be put into place for you. Keep us updated on how you are feeling during treatment. Hopefully what you report back to the group will help another member.

First of December I woke up with my right hand stiff, swollen, painful and unable to use my fingers. Be the end of the day, EVERY joint and bone was painful. I could nothing. Doctor thought it was Parvo virus B 19. After three weeks, no change. Tested positive for EBV. Which is strange, because I'm 61 and a nurse. Surely, sometime in my life I would have been exposed to it. I manifested itself as a rheumatoid arthritis flare. The only thing that would give me a little relief was the oxycontin I had left over from spine surgery. Imagine lying in bed cold, but you can't pull the cover up because of the pain on your fingers, wrists, elbows, shoulders because of the pain. No toliet hygiene unless husband helped me. I did notice that taking the 10 grams Vitamin C did help.

Hi, thank you for writing this. I came down with extreme fatigue. I was tested for EBV and I have a case where I was never exposed to it
until now. I've had it for 6 months. I can't hardly do anything. I need help and don't know what kind of doctor to go to. My PCP wasn't too nice my last visit. Just said it's like you have mono, and it will take awhile to get over. I don't know how to proceed to get help with this.

see fb

@jenchaney727 You are so right about the vitams
I had a severe case of mono having a rash over my entire body my titer ct was high The Dr put me on bedrest with lots of vitamins..

I need help I reactivated my neck is so swollen, I can not stay awake for 2 hours of the day, I feel viral every bone hurts I’m at a loss .my infectious dr kicked me out saying insulted her medical intelligence by showing her the thread I follow she said only uneducated people follow these threads. I know my body I know I have non Hodgkin no one helps me. ER docs I do not see anythin,well getting your dirty I phone out of my face to look down my mouth white patches there for a month, finally broke down I felt like there was really something wrong. I felt off. They say strep, then another one said tonsillitis they are all wrong. I lay in bed hoping I bleed from my ears 9 months with no one to see what immune disorder I have. A rash was on my face 7 months, already had one lymph biopsy Benign. So? Means nothing. I have a go fund me page no one donates. It like 750 dollars to walk into a Intergretive place. They will do everything for me. What is this a rich person disease? My primary checked out

Have you guys found anything else to relieve the EBV symptoms?? How are you doing now? Did the supplements help?

Hi can I ask you if the supplements you stated here helped you with symptoms and helping with getting rid of EBV ? I have been struggling for one a hald year and its very hard to live normal life! Thank you