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← Return to Treatment for chronic Epstein-Barr virus (EBV)
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Treatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: Jan 3 1:06am | Replies (638)Comment receiving replies
Hello @cummings3,
I'm sorry to hear about your son's diagnosis, but I'm so glad you chose to come to the Connect community to seek support and get some answers.
For now, I'd like to introduce you to @jenchaney727, @suesiegel, @arriba, @aman_23_23, @copiela, @jatl, @cheryldotson, who have all discussed Epstein-Barr Virus (EBV), and I sincerely hope they will return with some more insight.
Here is some more information from Mayo Clinic: http://mayocl.in/2iYRh3v
@cummings3, chronic fatigue is one of the symptoms of this condition; could you tell us a little more about your son? How old is he? What other symptoms does he have?
Replies to "Hello @cummings3, I'm sorry to hear about your son's diagnosis, but I'm so glad you chose..."
My 20 year old son has been sick since he had the gardasil 9 vaccine at 13. 1000s of people who have had it, are testing positive for epstein barr, pots, bartonella, lyme disease, when they had no contact with ticks. My sons rash was gianotti crosti, very rare especially for his age.
I am new to this, I have been dealing with Chronic EBV for 9 months. God bless you all that have been dealing with it for years. I am already frustrated with it. On top of having EBV I also have fibromyalgia that I have been dealing with for 10 + years. I am looking for anything that will help.
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Hello my name is Charlie @nomadkazoo new to this form. I'm 57 2015-2016 lived through 10 mo mystery illness. My head spins every time I review this lost period of time. Numerous Doctors and testing no direction found, issues from heart racing out of control to black outs, numerous infections, fatigue,bulging disk back neck. roving pain to swelling of extremities, grinding lansing head pain. mental fog, pain full burping lasting hours.
Late 2015 my daughter read article on EBV. Asked to be tested,results were very high Doctor in charge didn't no what to make of numbers. Referral to communicable disease specialist was made. After review and appointment was put on trial medication for herpes patients.
Worked for 3 weeks till med ran out,asked if we could continue with med, no was answer it was a trial and sent me on my way lost.
By accident through my wife's business we were introduced to and energy healer. From first visit with remedy to back to work in three weeks. Was told could take up to two years for my system to heal. Past two years have been up and down with a variety of illness. Wrote it off to fact my entire system was weakened and I still healing.
My concerns is that we only put a band aid on the EBV, for I'm out of work again with no help from local Doctors, had to demand test for EBV when told was not necessary. Numbers mirror past results, condition and issues same with couple new twist. Have not been able to visit energy healer she unavailable till 09/06 for reading. I'm not sure at this point if she can fully contain this health problem.
Is their help for me at the Mayo Clinic I need to work I need to get off this human hamster wheel.