← Return to Caregiving and Reality

Discussion

Caregiving and Reality

Caregivers | Last Active: Aug 5, 2023 | Replies (60)

Comment receiving replies
@anncgrl

My husband has FTD which is a type of dementia affecting the frontal lobe of the brain. As such the symptoms come and go and to a greater or lesser degree. We are told the lesser part will be longer and the greater part shorter as time goes on. That is probably already true but my nose is pressed up against the situation 24/7 so my ability to discern is cloudy at best. This is a quick rant cause I do need to try to clean that *^%%^ kitchen.

My darling husband is sleeping about 17 hours a day at this time. Sounds good in some ways but he begins to prowl around about 2:30 in the a.m. His medication makes him extremely out of it at that time of night. He gets up and then back to bed, then up and then sleeps on the sofa, up and then back to bed. Which would be great except he needs me in order to get around without breaking his neck. I have insomnia in a big way. This does come in handy for the night stuff but I end up not sleeping at all or only a few hours and nothing else gets done around this place because we are both kinda like zombies only I can walk and think and he can stumble and kinda think. O.K. forget the rant...this is beginning to sound hilarious to me rather than angry or sad or anything other than freaking hilarious. I know it isn't funny but humor helps so much and the picture of us up all hours of the night in our two states of mind trying to make some sense of things is pretty darn funny so no problem. I'm good Just needed to share.

And, by the way, trying to eat different is freaking difficult.

God bless each of you!

Jump to this post


Replies to "My husband has FTD which is a type of dementia affecting the frontal lobe of the..."

You are a brave and good spirited soul going through this !! I have one who is 3.5 yrs into frontal lobe damage. After his carotid stroke 3 parts of his right frontal lobe were affected. He was so nasty that a psychiatrist was sent to evaluate him. No cooperation. I try to realize that these are still the good days. I see his anxiety and unease in new or different situations. A noisy, crowded restaurant for example. I give thanks I can be at his side to calm, reassure and just plain love him. We had 20 good years. I am grateful and pray for strength and peace for all of us, we truly are in this together! I applaud your bravery and humor!! Take care, you are his caregiver and the wind beneath his wings.

I also have Frontal Lobe Dementia and my family is having a hard time dealing with me

Try to be patient but I know that it must be hard on me. Prayers your way. Marilyn