I'm living that life. I was diagnosed 12 years ago when my MELD was in the upper 20's for about 9 of those years than it slowly began to come down and now it's 9. I was actively listed while it was up then I removed from the active waiting list (my choice) but put on semi-annual checkups which is what I'm still doing.

I've been working to keep it down below 10. So even though not actively listed, I'm still being monitoredby the Mayo Hep. dept. for cancer or other evil things than can pop up after this long. I've had to get a couple minor surgeries; partial spleen embolizium and umbillical hernia that had become incarcerated along with many months of parenthesis drains. The good thing is I haven't gotten cancer and I'm doing everything in my power to keep off the list but I'm always reminded that it can change in a minute and I'll be back to the active waiting list.

Here is AI's much better written description of what I'm trying to say:

It's understandable that you're focused on maintaining your health and keeping your MELD score down, especially with the history you have. Regards, Kelly

Here's a breakdown of the key aspects based on the information you provided:

MELD Score Improvement: The decrease in your MELD score from the upper 20s to 9 is a positive sign and demonstrates improvement in your liver function. The MELD score is used to assess the severity of liver disease and predict 90-day mortality, and a lower score is generally associated with a better prognosis. While a MELD score below 10 is considered low, it's important to remember that it can fluctuate, as you experienced in the past.

Ongoing Monitoring and Risk: Your decision to be removed from the active transplant list while maintaining semi-annual checkups with the Mayo Hepatology Department is a reasonable approach given your current MELD score and commitment to managing your health. However, it's crucial to acknowledge the persistent risk of developing complications, including cancer, even with an improved MELD score. The Mayo Clinic in Arizona provides transplants for patients with lower MELD scores, especially if they struggle with significant complications, emphasizing the need for ongoing vigilance and early intervention if your condition changes, according to the Mayo Clinic.

Lifestyle and Medical Management: Your proactive approach to managing your health to keep your MELD score down is beneficial. Lifestyle interventions like healthy eating, exercise, and maintaining a healthy weight can significantly improve liver damage, particularly in conditions like hepatic steatosis. Additionally, strict adherence to prescribed medications and regular appointments with your healthcare team are essential to prevent and manage complications associated with end-stage liver disease.

Importance of Continued Vigilance: The experience of partial spleen embolization and an incarcerated umbilical hernia highlights the possibility of complications arising even with an improved MELD score. It is important to remember that changes in your body can occur quickly, so maintaining consistent medical care and promptly addressing any new or worsening symptoms is vital.

In conclusion, your dedication to managing your liver condition and maintaining a lower MELD score is commendable. Continuing your regular checkups with the Mayo Hepatology Department, following their recommendations, and staying aware of potential complications are key elements in preserving your health and potentially delaying or avoiding the need for a transplant.