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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: Aug 27 7:50pm | Replies (215)
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Profile picture for dbmenger @dbmenger

I had two lantreotide shots. They controlled my hot flashes and made me feel human but only the next day. After that I felt horrible and it exacerbated my IBS. My Chromogranin A level doubled to 603 before the shots and halved after them. I have not had any discernible tumors anywhere so shall I continue with maybe octrotide in an attempt to feel human?

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Replies to "I had two lantreotide shots. They controlled my hot flashes and made me feel human but..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 14 11:51am

I appreciate you sharing your experience with lantreotid shots, @dbmenger. You said that you have "...no discernible tumors anywhere." As I don't recall your NETs history, I'm wondering if the tumors were removed surgically.

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