If you have these symptoms would love your input.

Posted by rybren @rybren, Jun 30 1:30pm

Been to so many Dr’s, none have a clue.
Seems spike protein has messed me up, serious chronic fatigue, lately skin feels like I had a sunburn, burns and itches. Nothing visable.

Chonic fatigue hits me hard 1-2 days a week. Leaves me utterly exhausted for days, had every test imaginable.

Do others have these symptoms? What are you doing about it? Need some help.

Once again been to so many Dr’s, all types. They know nothing about this condition.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I was advised to take Nattokinase, bromalan and turmeric to address the spike protein.

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Profile picture for potudy @potudy

People have different symptoms depending on which organs or tissues the virus damaged or where it is still hiding. What has helped me the most with extreme fatigue and other symptoms is antivirals. Valacyclovir, starting 0.5 g three times a day, and then, as weeks pass, increasing to 1 g three times a day. You will know if it is going to help you within 1-2 months, after you reach 3 g a day. Let me know if you want me to expand.

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To Potudy,

Great news that you’re feeling less fatigue by taking Valacyclovir. Wonderful!
I’ve read here that Valacyclovir has helped others as well.
Could you share your doctor’s name and number with us? It’s nearly impossible to find ANY doctor who will treat fatigue with ANYthing! It would help us all if you could share your doctor’s information. Many of us would be willing to travel a long way to get effective treatment. Thanks! 😀

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Profile picture for tkinder @tkinder

I have had the same success with Valacyclovir improving my symptoms significantly. For me 1 gm twice a day seems to give me symptom relief. Sooo good to be able to have some sort of normalcy again.

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Please share your doctor’s name and phone number.

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Profile picture for iamawriter @iamawriter

Yes - I have the debilitating fatigue that is one of the primary symptoms for so may of us long haulers. I can SO relate about docs knowing nothing in terms of treatment. My PCP and pulmonologist both individually diagnosed me with Long Covid but I have to constantly advocate for my own health and treatment options. I've learned a lot from listening to other long haulers and what has helped them with specific symptoms that I also have. Nothing has helped my chronic fatigue except time. For me, I think micro-clots may be one of the major contributors to my fatigue. (I have 50+ other symptoms I am battling .) I recently started taking nattokinase after hearing from some other long haulers that it helped their fatigue. It's a natural supplement which 's a blood thinner and there's also some evidence that it degrades spike protein. Fingers crossed it works for me.

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I was not officially diagnosed but my last doctor visit concurred it sounds like long covid. I was tested negative for covid after over a year of being tested. Recently I had a serum test which indicated I was infected by covid "recently or prior." whatever that means, also positive for the spike protein (vax) with an extremely high number of antibodies. I am taking nattokinase, so far no harm is all I can say. When you look up Eliquis and other pharmaceuticals, they indicate "stops new clots from forming" but nothing about desolving the original clot.

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Profile picture for lkirnbauer @lkirnbauer

Chronic fatigue, when I saw that I thought Thyroid. Have you had your Thyroid Panels run? As your doctor to test your TSH, T3-Free, T4-Free, TPO Antibodies. You could have hypothyroidism. I had similar symptoms and had my thyroid levels checked and lo and behold I have Hypothyroidism and Hashimoto’s. I was exhausted and would fall asleep right after dinner in the evening, which isn’t me at all. Once I got my diagnosis, I began taking medication, Synthroid and I started on a nighter dose of 125 mcg and took along with it another drug called Cytomel 5 mcg. Now since my levels have come down, I’m only taking 75 mcg of Cytomel. I have my blood levels checked every 3 months and if my levels are in the normal range, no need to alter medications. Look into having this done and I would bet you will need medication too. Good luck on your health journey.

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One of the many, many doctors I've visited suggested thyroid issues. He prescribed two thyroid meds which didn't improve my fatigue or other symptoms. After several months, blood tests indicated the meds had damaged my thyroid. I of coursed ceased the meds.

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I'm so sorry. I don't presume to know what foods to avoid or which abs to ask for. I've had LH since 2020-- I know. A long time.
I went thru covid clinic, multiple doctors. Finally found an immunologist who helped enormously.

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Profile picture for iamawriter @iamawriter

Yes - I have the debilitating fatigue that is one of the primary symptoms for so may of us long haulers. I can SO relate about docs knowing nothing in terms of treatment. My PCP and pulmonologist both individually diagnosed me with Long Covid but I have to constantly advocate for my own health and treatment options. I've learned a lot from listening to other long haulers and what has helped them with specific symptoms that I also have. Nothing has helped my chronic fatigue except time. For me, I think micro-clots may be one of the major contributors to my fatigue. (I have 50+ other symptoms I am battling .) I recently started taking nattokinase after hearing from some other long haulers that it helped their fatigue. It's a natural supplement which 's a blood thinner and there's also some evidence that it degrades spike protein. Fingers crossed it works for me.

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I have major symptom of 'telangiectasias'. 3 years ago it started on my face and slowly moved to my upper extremities, neck, and ears. It is still spreading but after many doctors, finally diagnosed with LC. And hopefully it will stop with his care. It prob is caused from micro-clots which I will research more. I will have to go to a dermatologist to have them removed from my face. *** "Spider veins (telangiectasias) are damaged, visible blood vessels just beneath your skin's surface. They typically look red, blue or purple. They may appear in clusters that resemble spider webs or tree branches. Spider veins can form anywhere, but they usually develop in your legs or face." ***

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Profile picture for roxannelee @roxannelee

One of the many, many doctors I've visited suggested thyroid issues. He prescribed two thyroid meds which didn't improve my fatigue or other symptoms. After several months, blood tests indicated the meds had damaged my thyroid. I of coursed ceased the meds.

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That's crazy. Thyroid issues certainly should be considered as a possible cause, as hypothyroidism certainly can manifest as fatigue, but it sounds as though you were prescribed thyroid meds without first testing your levels?!
That's malpractice, if true.

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Profile picture for car0 @car0

I'm so sorry. I don't presume to know what foods to avoid or which abs to ask for. I've had LH since 2020-- I know. A long time.
I went thru covid clinic, multiple doctors. Finally found an immunologist who helped enormously.

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Do you mind sharing your Doctor's info and contact as majority of us with LC have yet to have any relief of any sort and doctors who are careless and just don't now what to do.

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Profile picture for krystalm @krystalm

Do you mind sharing your Doctor's info and contact as majority of us with LC have yet to have any relief of any sort and doctors who are careless and just don't now what to do.

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My doc is in Denver, CO. Anyone can private msg me & ask more. N

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