If you have these symptoms would love your input.

Yes, malaise (fatigue) is almost debilitating. Cognitive problems, brain fog, weakness in my extremities. Fortunately, I live 2 hours from U of Utah Post Covid Clinic. So far I have seen an occupational therapist & social worker. They helped with lifestyle changes and emotional support. I'm scheduled for an extensive panel of blood tests, sleep study and speech therapy. The clinic doesn't treat (because there is no cure yet) but refers you out to the relevant specialties for your symptoms. If you can get to a large teaching/research hospital, they may have a clinic. Of course, the professionals there are very dialed into the syndrome and a fountain of information and help.

No SCUBA? I didn't even think about that...

@diverdown1. I wouldn’t have either. Of all activities I thought that would’ve been allowed but descending to depth and depressurization causes inflammation. I even checked it with DAN Doctor

That is devastating, however, I have not been able to get anywhere to dive anyway. I am land locked. I do go to Florida every year, but I spend that time sitting on the beach and just being there. I love diving more than anything and was actually helping teach until the pandemic and obviously the quarantine and sharing a regulator for buddy breathing stopped. That was 4 years ago. I did not get Covid until 1/2022 and then 3/2022. Long COVID hit me 6/2022...and here we are. I have hope though.

I have the serious chronic fatigue everyday and overwhelmingly exhausted. Tried everything under the sun and nothing changes.
I also have serious random burning in my skin that really hurts sometimes.
Sometimes it also feels like large amounts of needles jabbing me at once in random areas of my body. random itching that instantly gives me hives especially around my face.
I also have visited many dr.'s in NWI/Midwest due to LC for 4 years now and at the point of giving up because I'm only getting worse with odd random symptoms coming out of nowhere that other's seem to be experiencing as well.
At this point, I really believe this isn't going away and it's slowing destroying our bodies for many.
I don't know how true it is or if it does help some but, I've read some reviews from people lately stating they also have extreme fatigue and they've tried many things without any relief. They've tried Mushroom coffee daily and seem to have more energy then they've had in over a year.
I think I'm going to try one more time(doesn't hurt) and attempt the mushroom coffee as in RYZE. I can hardly keep my eyes open sometimes from day to day but also can't sleep one straight hour for a long while now.
I hope you find relief and get better. Praying for you and everyone suffering from LC bc it's a serious nightmare

I'm right there with you.
Majority of Dr.'s don't care to figure out this LC stuff which we don't know much to treat and make it stop. Everything is just an experiment.
But, I as well, have zero relief with a laundry list of symptoms and some odd that are growing by the day.
It scares me bc I think this isn't going away.
I'm in the midwest and 4 years later I'm worse than I was almost as if I get the flu and pneumonia every few days with extreme fatigue daily and skin issues, dizziness, major brain fog, swelling, vision issues, memory issues getting worse and I'm 43.. Sleep doesn't exist for me anymore I'm just tired. I'm praying for you!

I understand. My GP is looking for a neurologist where I can get a realistic evaluation. Good luck to you.

suef

People have different symptoms depending on which organs or tissues the virus damaged or where it is still hiding. What has helped me the most with extreme fatigue and other symptoms is antivirals. Valacyclovir, starting 0.5 g three times a day, and then, as weeks pass, increasing to 1 g three times a day. You will know if it is going to help you within 1-2 months, after you reach 3 g a day. Let me know if you want me to expand.

I have had the same experience with Valacyclovir giving improvement. For me 1 gm twice a day has done the trick to minimize symptoms. There are multiple case reports about this online from reputable medical and science journals and a couple ongoing studies. My doctor was willing to give it a try with me.
I have posted this here several times and every time I do the post snd conversation disappears. This support group is only interested in us sharing our pain but not those bits of personal success.

I have had the same success with Valacyclovir improving my symptoms significantly. For me 1 gm twice a day seems to give me symptom relief. Sooo good to be able to have some sort of normalcy again.