Newly diagnosed invasive ductal and lobular in right breast

Posted by maggiejinx @maggiejinx, May 29 2:35pm

Hi. I just turned 50. I was recently diagnosed with a 6.1 cm non mass like enhancement which is confirmed invasive ductal and lobular cancer. I see the surgeon on Tuesday to find out the plan. I do believe he will recommend mastectomy due to the size and it is located centrally and under the nipple. I am debating where to have the left breast removed also even though it is not showing any signs of cancer. I don’t want to go flat for emotional reasons and also I am a double D bra size so it would be a huge difference between the sides. But it also makes me sad removing a healthy breast. I am also wondering whether I will need chemo before or after. Has anyone experienced this diagnosis or similar? I should add there is no lymph node involvement.

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Profile picture for ericab74 @ericab74

I had 1.9 cm in my left breast. I had them both removed. Idk about your insurance, but mine will pay for reconstruction. I'll be without for less than a year. You can buy prosthetics built into or separately if it will make you feel better. I did.

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Mine will pay for reconstruction too. I hope you are recovering well!!

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Profile picture for maggiejinx @maggiejinx

Mine will pay for reconstruction too. I hope you are recovering well!!

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In that case I would definitely opt for the dbl mastectomy. That way you'll have 2 perky new girls! I'm 51, I figured why not have the free surgery most women are paying thousands for. After that insurance will cover everything breast related.

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I have your same diagnosis. I will be starting chemotherapy next week and after my body recovers from that, I will have a single mastectomy. I did not opt for reconstruction as I am over 70 and feel no need for it.

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I think it would depend on Onco DX and kI 67 scores.

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My diagnosis was very similar (I had just turned 46). I think the chemo/surgery order is decided by your oncologist. In my case surgery came first and the outcome of that determined that I needed the chemo (it had spread to lymph nodes). So sometimes they learn more after looking at the removed tissue that helps them determine whether/how much chemo is needed. If you are triple negative I am pretty sure chemo comes first. Anyway, I bet you'll have that answer as soon as you meet with an oncologist. As far as removing the healthy breast, there is no right answer there - only the one you decide you can live with. I've heard of people keeping the healthy breast and then changing their mind and removing it later because the scanxiety got to them or they felt lopsided/mismatched. Worth asking insurance if that is allowed (a delayed removal of the healthy one). I decided to have aesthetic flat closure so removing the healthy one meant I could be symmetrical. I am glad I don't have to go in for mammograms/breast MRIs anymore. Best of luck to you.

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Profile picture for anatomary @anatomary

Thank you so much for the reply, advice, and well wishes. I'll be sure to strip those drains! I am the sister who is likely to want to clean the house the next day...my sister will be staying with me and will probably stop me🙃 My sister has notified her GP and the plan is for genetic testing - and then they'll go from there. It's good to have sisters; biological or chosen!

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@anatomary
Did you have the surgery? How are you doing? Hugs.

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I had the surgery July 11th! I’m doing OK. It was very painful the first day and still painful today but it’s tolerable. I spent the night in the hospital thank goodness and got lots of pain and anti nausea meds. Now it’s mainly painful when I move. I’m definitely in slow motion!! They removed 2 lymph nodes and found cancer in one. They are going to run more tests on the samples he took in surgery and then come up with a plan. Thank you for checking on me!!

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Profile picture for myoga @myoga

@anatomary
Did you have the surgery? How are you doing? Hugs.

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Yes, I had my surgery on the ninth. I'm doing pretty well... and probably because I'm taking my pain meds as scheduled. I had a bizarre reaction to the gabapentin; it made me unable to sleep so I really didn't get any sleep the first night and the next day I was super hyperactive; primarily my brain was flying, and my body wasn't very active. I walked the very next day twice in about a quarter of a mile each walk - and walking daily since. My drains are flowing well and I think I will have them out on Thursday. I was a bit spooked by how bright red bloody one drain was - and it didn't flow pink until just yesterday. All in all, I think I'm doing well for recovery. Now it's just waiting on the path to see if any further treatments are required. I did not have lymph nodes removed, instead were dyed so the sentinel lymph nodes can be isolatedand if I have more than pre-cancer, I will have an axillary dissection. Hopefully I'm all clear... Thanks for asking!

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Profile picture for anatomary @anatomary

Yes, I had my surgery on the ninth. I'm doing pretty well... and probably because I'm taking my pain meds as scheduled. I had a bizarre reaction to the gabapentin; it made me unable to sleep so I really didn't get any sleep the first night and the next day I was super hyperactive; primarily my brain was flying, and my body wasn't very active. I walked the very next day twice in about a quarter of a mile each walk - and walking daily since. My drains are flowing well and I think I will have them out on Thursday. I was a bit spooked by how bright red bloody one drain was - and it didn't flow pink until just yesterday. All in all, I think I'm doing well for recovery. Now it's just waiting on the path to see if any further treatments are required. I did not have lymph nodes removed, instead were dyed so the sentinel lymph nodes can be isolatedand if I have more than pre-cancer, I will have an axillary dissection. Hopefully I'm all clear... Thanks for asking!

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So glad you are doing well. The main thing is that you don’t have infection by now, you are well on your way to full recovery. The drain liquid turns pink in only a few days, that’s a good sign. Looks like you’re going to recover very quickly. The drain are such a nuisance, aren’t they? The toughest part is over. I think you’re all clear. By the way, I was prescribed oxycodone not gabapentin. I only took it at night and it made me sleep so well. I can see why people are addicted to it. I only took it for five days, didn’t want to get addicted to it. That’s a weird reaction you had with Gabapentin. You didn’t try to clean the house, did you? 🤗

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Yes, the drains are probably the biggest nuisance. Today I noticed deep (under the skin) and intense itching sensation; I wish I could unzip and scratch! I suppose that's part of the healing proces too.

I think I was prescribed gabapentin (and second of ibuprofen 800 mg ) because following my lumpectomy I had a reaction Tylenol (became flush, and had shortness of breath) so they took me off thier standard of hydrocodone because it contains Tylenol- maybe oxycodone does as well.

BTW I did try to clean my house -and my sister did yell at me! I was lucky to have her visit for almost a week to help out. I hope I have the same ambition to clean the house after recovery🙃

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