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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)Comment receiving replies
Welcome to Connect @afieldcrow…Alison. I love crows so I can’t help but admire your @name! Just now reading a book called The Comfort of Crows; A Backyard Year by Margaret Renkl. ☺️
I’m sorry to hear that you’re not feeling on top of the world right now and see that you’re newly diagnosed with MDS. That’s a blood condition that can affect production of one or more of the blood cell types. You mentioned having low platelets but your neutrophils (WBC) are also low. How are your red blood counts?
Has your doctor talked to you about possible treatments?
Replies to "Welcome to Connect @afieldcrow…Alison. I love crows so I can’t help but admire your @name! Just..."
Lori, I just saw your comment about Crow’s 😜. My maiden name is Field and I married a Crow so that made me a FIELDCROW 🤣
Is that a good book? I’ll have to check it out!
I wanted to ask you what questions you would suggest I ask my Dr? Any advice for me about anything?
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Thanks! Yes my hematologist told me that the Single Lineage Dysplasia is mainly from my platelets. But I have never had an issue with my platelets! I’ve always had terrible low WBC results. My RBC are thankfully normal. I’m not complaining. I’m grateful I’m considered low risk. I am concerned. I diagnosed myself with MSD probably over a year ago! My friends told me I’m not supposed to do that but you do have to self-advocate! My hematologist is going to discuss my case with his Dr friend at UVA and is going to get back to me. In the meantime we’ll just keep an eye on my labs. My husband wants me to go to UVA for a second opinion.