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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)Comment receiving replies
Hi Jacklyn, Oh, I understand now! I think you’re getting Venectoclax and Vidaza! They weren’t options when I had treatment 6 years ago! Your doctor is right, those two drugs are much different than what you had when you were being treated for breast cancer years ago. V & V are less intensive and much better tolerated.
I’m, sorry that I didn’t realize V&V are now referred to as 7+3 as well. Back when I had my treatment 7+3 was cytarabine and idarubicine and it was a week as an inpatient.
This will be a much different for you than with your earlier treatments for BC. The side effects shouldn’t be so dramatic. I hope that you’ll begin feeling some positive improvements after you start treatment. I felt so horrible before my diagnosis that when I began chemo, within 2 days I was starting to feel better. My chronic fever of 102 that I had for several weeks finally broke too.
As you’ve read in the forum with other members taking these meds, this new regimen for AML used in we older patients, has been a God-send where otherwise treatments were harsh and not tolerated well.
I’m can certainly understand the anxiety of all of this! Do you have family or friends nearby to talk to and help out if you need them?
Replies to "Hi Jacklyn, Oh, I understand now! I think you’re getting Venectoclax and Vidaza! They weren’t options..."
Hi Lori. Well I was supposed to start my treatment this week. When I saw my oncologist last Thursday she said I am thinking of delaying your treatment. Your blood counts are good. I know two other hospitals recommended treatment but I am looking at you and you look good. So what do you want to do. I said I am trusting your decision to delay it. She is on vacation for 3 weeks but her counterpart will se me in 2 weeks and I will do a blood test. It is all set up for me to start but it is on hold.
I got 6 bites on the back of my neck. I went to my pharmacist and he said they are bites. He said if you get fever or don’t scratch and I put after bite on them. I am also taking loratadine because the itching came back. Anyway what go you think about the postponement.
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Oh Lori. I am so happy you
Know the treatments I am talking about. I know I must confuse you at times. This is why I bring my son with me when I see my oncologist because I am half listening and trying to grasp it all. I do have a very good support system and was very good mentally through breast cancer etc loosing my husband being diagnosed wet itch MDS right after his death. Having a hip
Replacement. All the hospital stays for pneumonia, severe ear infection, abscess in my stomach but that fall changed everything back in November where I fractured my vertebrae’s. I am
Doing better I think it’s just going to take time. Once I start my treatments I will also see how they affect me and what I need to do. Thanks so
Much for being there. My mind is all over the place because it seems one thing after the other. It never stops. I Also have my faith. I believe God is closer to
Us when we are sick.