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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)

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No I am not going in the hospital but I have to go every day. She said it was like an injection. And I also get a pill to take orally. And I go home. She didn’t. Mention an iv. I will know more Thursday. She said I have to go to the hospital for the injection and I can’t give it to myself because it’s chemo. are there any questions you can think of I can ask. I also have suffered for years ftom depression and anxiety which they got under control with Effexor years ago. But after my fall and fracturing my Ll ad L5. Vertebrae which landed me 3 times in the Er put on morphine and other meds my antidepressant stopped working. Now I feel
It is working and she added clonazapan to it and it was really good for awhile. I got back out there with my friends but after this news it is still helping but i
Do get waves of anxiety at times which scares me and I am starting not to want to go out as much. I also have a lot a fatigue. I am more afraid of getting more anxious than the treatments. If that makes any sense.

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Replies to "No I am not going in the hospital but I have to go every day. She..."

Hi Jacklyn, Oh, I understand now! I think you’re getting Venectoclax and Vidaza! They weren’t options when I had treatment 6 years ago! Your doctor is right, those two drugs are much different than what you had when you were being treated for breast cancer years ago. V & V are less intensive and much better tolerated.

I’m, sorry that I didn’t realize V&V are now referred to as 7+3 as well. Back when I had my treatment 7+3 was cytarabine and idarubicine and it was a week as an inpatient.

This will be a much different for you than with your earlier treatments for BC. The side effects shouldn’t be so dramatic. I hope that you’ll begin feeling some positive improvements after you start treatment. I felt so horrible before my diagnosis that when I began chemo, within 2 days I was starting to feel better. My chronic fever of 102 that I had for several weeks finally broke too.
As you’ve read in the forum with other members taking these meds, this new regimen for AML used in we older patients, has been a God-send where otherwise treatments were harsh and not tolerated well.
I’m can certainly understand the anxiety of all of this! Do you have family or friends nearby to talk to and help out if you need them?