Hi @knissy, Here is a link to a previous post where you asked about immunotherapy for lymphoma. You had some great answers from other members, including @shmerdloff who shared that they are taking Rituximab.
Now that you’ve had several weeks to settle into your diagnosis you may want to look back at that discussion with a fresh look. ☺️
https://connect.mayoclinic.org/discussion/getting-immunotherapy-for-slow-growing-lymphoma-anyone-had-that-thera/
I’ve personally had Rituximab infusions but for another condition. It was really well tolerated and for me, it was a miracle drug…a life saver! Because it’s a drug routinely used for non Hodgkin’s lymphoma, you may find it works very well for your MZL to reduce all of your debilitating symptoms as it addresses the underlying issue of lymphoma.

Usually these infusions are 1 time per week for several weeks. The initial treatment can cause a little reaction (at the time of the infusion) but the infusion nurses are well prepared for this because it’s so common. After that, it’s usually smooth sailing.
The first infusion can take a couple hours. So bring along a goodie bag filled with things to keep you busy. iPad, book, snacks, water bottle. Though often, there is a snack bar and juice bar in the infusion lounge in most clinics.
The IV will be portable so you can get up and walk around, use the restroom, etc..
I think you’ll find the thought of this is more intimidating than the actual infusion itself.

When is your first infusion?

Hello, I too have been (recently) diagnosed with marginal zone lymphoma. I have swollen salivary gland and an enlarged spleen- will start immunotherapy Ritixumab infusion first week in August- I am scared, would like to talk to you! Leeann